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25/04/2017 05:34

Project Information

Quality and Outcomes Research Unit (QORU)

Principal investigator(s) at PSSRU: Julien Forder, Josť-Luis FernŠndez, Ray Fitzpatrick
Team: Julien Forder, Ray Fitzpatrick, Josť-Luis FernŠndez, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Jacquetta Holder, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante

Start year: 2010
End year: 2017

The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has been funded to conduct a programme of research to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about peopleís outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.

 

Publications

Showing 29 results

Batchelder, L (2016)
Living with Long-Term Conditions: Validation of the Long-Term Conditions Questionnaire (LTCQ)

Project outline

Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT)
2015
Van Leeuwen K, Bosmans J, Jansen A, Rand S, Towers A, Smith N, Razik K, Trukeschitz B, van Tulder M, van der Horst H, Ostelo R
Health and Quality of Life Outcomes 13:56

Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer)
2015
Rand S, Malley J, Forder J, Netten A
Quality of Life Research 24 11 2601-2614

Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S (2015)
Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)
QORU working paper

Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S (2015)
Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) - Appendix
QORU working paper

Whelton R, Turnpenny A, Caiels J, Crowther T, Richardson L, Beadle-Brown J, Apps J, Rand S (2015)
Making the Adult Social Care Outcomes Toolkit Easy Read
QORU working paper

Peters M, Hunter C, Kelly L, Potter C, Gibbons E, Jenkinson C, Towers A, Forder J, Coulter A, Fitzpatrick R (2015)
The development of the long-term conditions questionnaire (LTCQ). Interim report

Heath C, Malley J, Razik K, Jones K, Forder J, Fox D, Caiels J, Beecham J (2015)
How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project

Heath C, Malley J, Razik K, Jones K, Forder J, Fox D, Caiels J, Beecham J (2015)
How can MAX help local authorities to use social care data to inform local policy? (Executive summary)

Al-Tahhan, Nat (2015)
How can MAX help local authorities to use social care data to inform local policy? (Infographic)

Heath C, Razik K, Jones K, Beecham J, Forder J, Malley J (2015)
Further analysis of ASCS and PSS SACE data: Case studies of local authority (LA) practice

Rand S, Caiels J (2015)
Using Proxies to assess Quality of Life: A Review of the Issues and Challenges

Heath C, Malley J, Razik K, Jones K, Forder J, Fox D, Caiels J, Beecham J (2015)
How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project. Executive Summary

Heath C, Malley J, Razik K, Jones K, Forder J, Caiels J, Beecham J (2015)
Meeting local information needs with ASCS and PSS SACE data (Blog)

Carers' quality of life and experiences of adult social care support in England
2014
Rand S, Malley J
Health and Social Care in the Community 22 4 375-385

What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey
2014
Van Leeuwen K, Malley J, Bosmans J, Jansen A, Ostelo R, van der Horst H, Netten A
Health and Place 29 104-113

Quality of life and burden in caregivers for individuals with Parkinsonís disease
2014
Peters M
Focus on Parkinsonís Disease 24 1 44-48

Using cost-effectiveness estimates from survey data to guide commissioning: an application to home care
2014
Forder J, Malley J, Towers A, Netten A
Health Economics 28 3 979-992

Feeling in control: comparing older peopleís experiences in different care settings
2014
Callaghan L, Towers A
Ageing and Society 34 8 1427-1451

Using online reviews in social care
2014
Trigg L
Social Policy and Administration 48 3 361-378

The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey
2014
Peters M, Crocker H, Jenkinson C, Doll H, Fitzpatrick R
BMJ Open 4 2 e003968

Razik K, Beecham J (2014)
Review of factors important in use of survey data for quality and performance improvement: Report from literature review

Patientsí experiences of health and social care in long-term neurological conditions in England: a cross-sectional study
2013
Peters M, Fitzpatrick R, Doll H, Playford ED, Jenkinson C
Journal of Health Services Research and Policy 18 1 28-33

Personalised care planning for adults with long-term (chronic) conditions
2013
Coulter A, Entwistle V, Eccles A, Ryan S, Shepperd S, Perera R
Cochrane Database of Systematic Reviews 5 CD010523

FernŠndez J-L, Hughes A, Watson K, Forder J, Fitzpatrick R (2013)
Report on using the GPPS to assess trends in EQ-5D scores for people with long-term conditions
Quality and Outcomes of Person-Centred Care Research Unit

Forder J, FernŠndez J-L, Fitzpatrick R (2013)
Some considerations relating to the attribution of NHS activity to outcomes for people with long-term conditions
Quality and Outcomes of Person-centred Care Policy Research Unit

Apps J, Crowther T, Forder J (2013)
Personal outcome measures and postal surveys of social care
Quality and Outcomes of Person-Centred Care Policy Research Unit

Ryan S (2012)
"Itís very weird having other people in the space that you think is kind of privateĒ: Choice and decision making around home based health and social care services (Final report)
QORU working paper 2848

Beadle-Brown J, Ryan S, Windle K, Holder J, Turnpenny A, Smith N, Richardson L, Whelton R (2012)
Engagement of People with Long-Term Conditions in Health and Social Care Research: Barriers and Facilitators to Capturing the Views of Seldom Heard Populations. Summary
QORU working paper 2849