Quality and Outcomes Research Unit (QORU)
- Principal investigator(s):
- Julien Forder, José-Luis Fernández, Ray Fitzpatrick
- Team:
- Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
- Start year:
- 2010
- End year:
- 2018
- Funder:
- Secretary of State for Health
- Partners:
- PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
- Website:
- https://www.qoru.ac.uk
The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.
Publications
Journal Articles
Journal Article
Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER)
2020
Journal of Intellectual & Developmental Disability 45 2 119-132
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Enhancing primary care support for informal carers: A scoping study with professional stakeholders
2020
Health and Social Care in the Community 28 2 642-650
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Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT)
2019
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Journal Article
'We're Giving them Choice Which Is Controlled Choice' - Care Managers' Views on Finding Social Care Support for People with Learning Disabilities
2019
The British Journal of Social Work
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Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3?L
2019
Health and Quality of Life Outcomes 17 184
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The impact of social care services on carers’ quality of life
2019
International Journal of Care and Caring
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Are reasons for care-giving related to carers’ care-related quality of life and strain? Evidence from a survey of carers in England
2018
Health and Social Care in the Community 27 151-160
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The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice
2017
Health and Social Care in the Community 25 5 1607-1619
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Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT)
2017
Health and Quality of Life Outcomes 15:108
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Building the House of Care for people with long-term conditions: the foundation of the House of Care framework
2017
British Journal of General Practice 66 645 e288-e290
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A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers
2017
Quality of Life Research
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The Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England
2017
BMJ Open
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Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England
2017
Health and Quality of Life Outcomes 15 163
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The impact of long-term care on quality of life
2017
Health Economics 27 3 43-58
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Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care. The 'expected' ASCOT method.
2017
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Journal Article
Psychometric properties of carer-reported outcome measures in palliative care: A systematic review
2016
Palliative Medicine 30 1
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The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development
2016
Patient Related Outcome Measures 7 109-125
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Refinement of the Long-Term Conditions Questionnaire (LTCQ): Patient and expert stakeholder opinion
2016
Patient Related Outcome Measures 7 183-193
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Patient feedback for quality improvement in general practice
2016
British Medical Journal 352 352:i913
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Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)
2016
Journal of Applied Research in Intellectual Disabilities
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