Quality and Outcomes Research Unit (QORU)

Principal investigator(s):
Julien Forder, José-Luis Fernández, Ray Fitzpatrick
Team:
Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
Start year:
2010
End year:
2018
Funder:
Secretary of State for Health
Partners:
PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)

The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.

Publications

Journal Articles

Journal Article

Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT)

2017

Health and Quality of Life Outcomes 15:108

Read more

Journal Article

Building the House of Care for people with long-term conditions: the foundation of the House of Care framework

2017

British Journal of General Practice 66 645 e288-e290

Read more

Journal Article

A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers

2017

Quality of Life Research

Read more

Journal Article

Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England

2017

Health and Quality of Life Outcomes 15 163

Read more

Journal Article

The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice

2016

Health and Social Care in the Community

Read more

Journal Article

Psychometric properties of carer-reported outcome measures in palliative care: A systematic review

2016

Palliative Medicine 30 1

Read more

Journal Article

The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development

2016

Patient Related Outcome Measures 7 109-125

Read more

Journal Article

Refinement of the Long-Term Conditions Questionnaire (LTCQ): Patient and expert stakeholder opinion

2016

Patient Related Outcome Measures 7 183-193

Read more

Journal Article

Patient feedback for quality improvement in general practice

2016

British Medical Journal 352 352:i913

Read more

Journal Article

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)

2016

Journal of Applied Research in Intellectual Disabilities

Read more

Journal Article

Use of quality information in decision making about health and social care services - a systematic review

2015

Health and Social Care in the Community 23 4 349-361

Read more

Journal Article

On interviewing people with pets: reflections from qualitative research on experiences with a long term condition

2015

Sociology of Health and Illness 37 1 67-80

Read more

Journal Article

Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer)

2015

Quality of Life Research 24 11 2601-2614

Read more

Journal Article

Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT)

2015

Health and Quality of Life Outcomes 13:56

Read more

Journal Article

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: A qualitative study

2015

BMJ Open 5 e006986

Read more

Journal Article

Personalised care planning for adults with chronic or long-term health conditions

2015

Cochrane Database of Systematic Reviews

Read more

Journal Article

Time to deliver patient centred care

2015

British Medical Journal 350 350:h530

Read more

Journal Article

Feeling in control: comparing older people’s experiences in different care settings

2014

Ageing and Society 34 8 1427-1451

Read more

Journal Article

Using online reviews in social care

2014

Social Policy and Administration 48 3 361-378

Read more

Journal Article

Carers' quality of life and experiences of adult social care support in England

2014

Health and Social Care in the Community 22 4 375-385

Read more