Quality and Outcomes Research Unit (QORU)
- Principal investigator(s):
- Julien Forder, José-Luis Fernández, Ray Fitzpatrick
- Team:
- Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
- Start year:
- 2010
- End year:
- 2018
- Funder:
- Secretary of State for Health
- Partners:
- PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
- Website:
- https://www.qoru.ac.uk
The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.
Publications
Journal Articles
Journal Article
The PDQ-Carer: Development and validation of a summary index score
2013
Parkinsonism and Related Disorders 19 4 448-449
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The relationship between experiences of health services and quality of life: a cross-sectional survey with carers of three neurological conditions
2013
Health and Quality of Life Outcomes 11 103
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Quality in the provision of headache care. 1: Systematic review of the literature and commentary
2012
Journal of Headache and Pain 13 6 437-447
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The development and validation of a quality of life measure for the carers of people with Parkinson’s Disease (the PDQ-CARER)
2012
Parkinsonism and Related Disorders 18 5 483-487
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Factors influencing quality of life in caregivers of people with Parkinson’s disease and implications for clinical guidelines
2012
Parkinson’s Disease 2012
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The impact of perceived lack of support provided by health and social services to caregivers of people with motor neuron disease
2012
Amyotrophic Lateral Sclerosis 13 2 223-228
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Does self-reported well-being of patients with Parkinson’s disease influence caregiver strain and quality of life?
2011
Parkinsonism and Related Disorders 17 5 348-352
Read moreEdited Books
Edited Book
Quality of Life Measures in Neurodegenerative and Related Conditions
2011
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Book Sections
Book Section
Patient and public involvement in healthcare
2016
Healthcare Management
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Personalised care planning
2016
Shared Decision-Making in Healthcare – Achieving Evidence-Based Patient Choice
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Engaging older patients in their treatment and care
2015
Oxford Textbook of Geriatric Medicine
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Condition-specific measures
2014
Encyclopedia of Quality of Life and Well-Being Research 185-188
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Disease-specific questionnaires
2014
Encyclopedia of Quality of Life and Well-Being Research 188-188
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‘Quality’ in headache care. What is it and how can it be measured?
2011
Handbook of Headache 70-79
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Preface
2011
Quality of Life Measures in Neurodegenerative and Related Conditions xi-xii
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Outcome measures for informal carers of individuals with neurodegenerative conditions
2011
Quality of Life Measures in Neurodegenerative and Related Conditions 114-138
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Translating patient-reported outcome measures (PROMs) for cross-cultural studies
2011
Quality of Life Measures in Neurodegenerative and Related Conditions 139-146
Read moreReports
Report
Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners
2017
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Report
IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF)
2016
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Report
Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary
2016
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