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Research Interests
James is a Senior Research Fellow at the PSSRU, University of Kent. Since joining in 2007 James has worked on a multitude of research projects, primarily funded by the National Institute for Health and Care Research. These have included the evaluation of policy initiatives (e.g. the Better Fund and Personal Health Budgets).
James is currently a co-investigator in the NIHR Policy Research Unit in Quality, Safety and Outcomes Policy Research Unit (QSO). The QSO is a collaboration between the Universities of Kent and Oxford, the London School of Hygiene and Tropical Medicine (LSHTM), the Picker Institute and Hull-York Medical School. Its primary purpose is to produce robust, relevant, and usable research aimed at improving the quality and outcomes of the health and social care system. He is also working in the NIHR Policy Research Unit in Adult Social Care (ASCRU) which is led by Dr. José-Luis Fernandez at the Care Policy and Evaluation Centre (CPEC), London School of Economics.
James is a member of the Adult Social Care Outcomes Toolkit (ASCOT) team (www.pssru.ac.uk/ascot) an outcomes measure used internationally in research and evaluation to inform long-term care policy and practice. He has been involved in the translation and cross validation of ASCOT into German and Japanese, and the development of adapted measures (ASCOT-ER, ASCOT-Proxy and ASCOT-ER (OP)).
James’ main research interests are centred around the integration of health and social care, measuring the impact of social care, and the development of adapted outcome measures for people with cognitive and communication difficulties. Recently he has led work developing evaluation methods and identifying outcomes for strengths-based approaches in social work.
James Caiels' Publications
Journal Articles
Journal Article
Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care.
Quality of Life Research
(2024)Caiels J, Rand S, Mikelyte R
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Journal Article
Assessing progress in managing and improving quality in nascent integrated care systems in England (2023)
Mirza Lalani, Priya Sugavanam, James Caiels, Helen Crocker, Sarah Gunn, Harriet Hay, Helen Hogan, Bethan Page, Michele Peters, Raymond Fitzpatrick
Journal of Health Services Research & Policy , 29, 122-133
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Strengths-based approaches - perspectives from practitioners (2023)
Caiels, J., Silarova, B., Milne, A., Beadle-Brown, J.
British Journal of Social Work , 00, 1-21
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Supporting the involvement of older adults with complex needs in evaluation of outcomes in long-term care at home programmes. (2022)
Phillipson, L., Towers, A., Caiels, J., Smith, L
Health Expectations An International Journal of Public Participation In Health Care and Health Policy , 1-11
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Personal health budgets: a mechanism to encourage service integration? (2022)
Welch, E., Jones, K., Fox, D. and Caiels, J.
Journal of Integrated Care 3, 30, 251-262
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The Development of a Core Outcome Set for Trials and Evaluative Studies in Adult Social Care. Journal of Long-Term Care (2021)
Sugavanam, T., Caiels, J., Peters, M., Fitzpatrick, R
Journal of Long-Term Care , 438-445
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Strengths-Based Approaches in Social Work and Social Care: Reviewing the Evidence (2021)
Caiels, J., Milne, A., Beadle-Brown, J.
Journal of Long-Term Care , 401-422
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Challenges in integrating health and social care: the Better Care Fund in England. (2020)
Harlock J., Caiels J., Marczak J., Peters M., Fitzpatrick R., Wistow G., Forder J., Jones K
Journal of Health Services Research & Policy 25, 2, 86-93
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Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER) (2020)
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N,
Journal of Intellectual & Developmental Disability 45, 2, 119-132
Taylor & Francis Online
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A cohesive research approach to assess care-related quality of life: Lessons learned from adapting an easy read survey with older service users with cognitive impairment. (2019)
Phillipson, L., Smith, L., Caiels, J., Towers, A., & Jenkins, S
International Journal of Qualitative Methods 18
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Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: Developing a proxy version of the adult social care outcomes toolkit (ASCOT). (2019)
Caiels, J., Rand, S., Crowther, T., Collins, G., & Forder, J
BMC Health Services Research, 19, 1, 201-019-4025-1
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Letter to the Editor re: McEwan et al (2019) Moving on from Quality Assurance: Exploring Systems — Outcomes in Disability Services (2019)
Stacey Rand, Ann Marie Towers, James Caiels
Journal of Policy and Practice in Intellectual Disabilities
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Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT) (2019)
Caiels J, Rand S, Crowther T, Collins G, Forder J,
Springer Nature
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Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT) (2017)
Rand S, Caiels J, Collins G, Forder J
Health and Quality of Life Outcomes , 15:108
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Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) (2016)
Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Rand S
Journal of Applied Research in Intellectual Disabilities
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Implementing personal health budgets in England: a user-led approach to substance misuse (2016)
Welch E, Jones K, Caiels J, Windle K, Bass R
Health and Social Care in the Community
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Personalization in the health care system: do personal health budgets impact on outcomes and cost (2013)
Jones K, Forder J, Caiels J, Welch E, Glendinning C, Windle K
Journal of Health Services Research and Policy 18, 2 suppl, 59-67
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Measuring the outcomes of long-term care (2011)
Forder J, Caiels J
Social Science and Medicine 73, 12, 1766-1774
Read moreBook Sections
Book Section
Personal health budgets: implementation and outcomes (2016)
Jones K, Forder J, Caiels J, Welch E, Windle K
Policy Press
Read moreReports
Report
Personal health budgets: Targeting of support and the service provider landscape (2018)
Jones K, Welch E, Fox D, Caiels J, Forder J
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