Training carers of stroke patients: randomised controlled trial
Please note: this is a legacy publication from CPEC (formely PSSRU at LSE).British Medical Journal 328 1099-1104
Available online: 6 May 2004
Abstract
BackgroundInformal care givers support disabled stroke patients at home but receive little training for the caregiving role. ObjectiveTo evaluate the effectiveness of training care givers in reducing burden of stroke in patients and their care givers. DesignA single, blind, randomised controlled trial. SettingStroke rehabilitation unit. Subjects300 stroke patients and their care givers. InterventionsTraining care givers in basic nursing and facilitation of personal care techniques. Main outcome measuresCost to health and social services, caregiving burden, patients' and care givers' functional status (Barthel index, Frenchay activities index), psychological state (hospital anxiety and depression score), quality of life (EuroQol visual analogue scale) and patients' institutionalisation or mortality at one year. ResultsPatients were comparable for age (median 76 years; interquartile range 70-82 years), sex (53% men), and severity of stroke (median Barthel index 8; interquartile range 4-12). The costs of care over one year for patients whose care givers had received training were significantly lower (£10 133 v£13 794 ($18 087 v$24 619; € 15 204 v€20 697); P = 0.001). Trained care givers experienced less caregiving burden (care giver burden score 32 v41; P = 0.0001), anxiety (anxiety score 3 v4; P = 0.0001) or depression (depression score 2 v3; P = 0.0001) and had a higher quality of life (EuroQol score 80 v70; P = 0.001). Patients' mortality, institutionalisation, and disability were not influenced by caregiver training. However, patients reported less anxiety (3 v4.5; P < 0.0001) and depression (3 v4; P < 0.0001) and better quality of life (65 v60; P = 0.009) in the caregiver training group. ConclusionTraining care givers during patients' rehabilitation reduced costs and caregiver burden while improving psychosocial outcomes in care givers and patients at one year.
BackgroundInformal care givers support disabled stroke patients at home but receive little training for the caregiving role. ObjectiveTo evaluate the effectiveness of training care givers in reducing burden of stroke in patients and their care givers. DesignA single, blind, randomised controlled trial. SettingStroke rehabilitation unit. Subjects300 stroke patients and their care givers. InterventionsTraining care givers in basic nursing and facilitation of personal care techniques. Main outcome measuresCost to health and social services, caregiving burden, patients' and care givers' functional status (Barthel index, Frenchay activities index), psychological state (hospital anxiety and depression score), quality of life (EuroQol visual analogue scale) and patients' institutionalisation or mortality at one year. ResultsPatients were comparable for age (median 76 years; interquartile range 70-82 years), sex (53% men), and severity of stroke (median Barthel index 8; interquartile range 4-12). The costs of care over one year for patients whose care givers had received training were significantly lower (£10 133 v£13 794 ($18 087 v$24 619; € 15 204 v€20 697); P = 0.001). Trained care givers experienced less caregiving burden (care giver burden score 32 v41; P = 0.0001), anxiety (anxiety score 3 v4; P = 0.0001) or depression (depression score 2 v3; P = 0.0001) and had a higher quality of life (EuroQol score 80 v70; P = 0.001). Patients' mortality, institutionalisation, and disability were not influenced by caregiver training. However, patients reported less anxiety (3 v4.5; P < 0.0001) and depression (3 v4; P < 0.0001) and better quality of life (65 v60; P = 0.009) in the caregiver training group. ConclusionTraining care givers during patients' rehabilitation reduced costs and caregiver burden while improving psychosocial outcomes in care givers and patients at one year.