Project information

Journal Article

Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER)

2020

Journal of Intellectual & Developmental Disability 45 2 119-132

Journal Article

Enhancing primary care support for informal carers: A scoping study with professional stakeholders

2020

Health and Social Care in the Community 28 2 642-650

Journal Article

Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT)

2019

Journal Article

'We're Giving them Choice Which Is Controlled Choice' - Care Managers' Views on Finding Social Care Support for People with Learning Disabilities

2019

The British Journal of Social Work

Journal Article

Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3?L

2019

Health and Quality of Life Outcomes 17 184

Journal Article

The impact of social care services on carers’ quality of life

2019

International Journal of Care and Caring

Journal Article

Are reasons for care-giving related to carers’ care-related quality of life and strain? Evidence from a survey of carers in England

2018

Health and Social Care in the Community 27 151-160

Journal Article

The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice

2017

Health and Social Care in the Community 25 5 1607-1619

Journal Article

Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT)

2017

Health and Quality of Life Outcomes 15:108

Journal Article

Building the House of Care for people with long-term conditions: the foundation of the House of Care framework

2017

British Journal of General Practice 66 645 e288-e290

Journal Article

A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers

2017

Quality of Life Research

Journal Article

The Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England

2017

BMJ Open

Journal Article

Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England

2017

Health and Quality of Life Outcomes 15 163

Journal Article

The impact of long-term care on quality of life

2017

Health Economics 27 3 43-58

Journal Article

Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care. The 'expected' ASCOT method.

2017

Journal Article

Psychometric properties of carer-reported outcome measures in palliative care: A systematic review

2016

Palliative Medicine 30 1

Journal Article

The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development

2016

Patient Related Outcome Measures 7 109-125

Journal Article

Refinement of the Long-Term Conditions Questionnaire (LTCQ): Patient and expert stakeholder opinion

2016

Patient Related Outcome Measures 7 183-193

Journal Article

Patient feedback for quality improvement in general practice

2016

British Medical Journal 352 352:i913

Journal Article

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)

2016

Journal of Applied Research in Intellectual Disabilities

Journal Article

Use of quality information in decision making about health and social care services - a systematic review

2015

Health and Social Care in the Community 23 4 349-361

Journal Article

On interviewing people with pets: reflections from qualitative research on experiences with a long term condition

2015

Sociology of Health and Illness 37 1 67-80

Journal Article

Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer)

2015

Quality of Life Research 24 11 2601-2614

Journal Article

Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT)

2015

Health and Quality of Life Outcomes 13:56

Journal Article

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: A qualitative study

2015

BMJ Open 5 e006986

Journal Article

Personalised care planning for adults with chronic or long-term health conditions

2015

Cochrane Database of Systematic Reviews

Journal Article

Time to deliver patient centred care

2015

British Medical Journal 350 350:h530

Journal Article

Feeling in control: comparing older people’s experiences in different care settings

2014

Ageing and Society 34 8 1427-1451

Journal Article

Using online reviews in social care

2014

Social Policy and Administration 48 3 361-378

Journal Article

Carers' quality of life and experiences of adult social care support in England

2014

Health and Social Care in the Community 22 4 375-385

Journal Article

Using cost-effectiveness estimates from survey data to guide commissioning: an application to home care

2014

Health Economics 28 3 979-992

Journal Article

The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey

2014

BMJ Open 4 2 e003968

Journal Article

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

2014

Health and Quality of Life Outcomes 12 123

Journal Article

What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey

2014

Health and Place 29 104-113

Journal Article

Quality of life and burden in caregivers for individuals with Parkinson’s disease

2014

Focus on Parkinson’s Disease 24 1 44-48

Journal Article

People with limiting long-term conditions report poorer experiences and more problems with hospital care

2014

BMC Health Services Research 14 14:33

Journal Article

Collecting data on patient experience is not enough: they must be used to improve care

2014

British Medical Journal 348 348:g2225

Journal Article

Patients’ experiences of health and social care in long-term neurological conditions in England: a cross-sectional study

2013

Journal of Health Services Research and Policy 18 1 28-33

Journal Article

Personalised care planning for adults with long-term (chronic) conditions

2013

Cochrane Database of Systematic Reviews 5 CD010523

Journal Article

The Stroke Impact Scale: Validation in a UK setting and development of a SIS short form and SIS index

2013

Stroke 44 2532-2535

Journal Article

The PDQ-Carer: Development and validation of a summary index score

2013

Parkinsonism and Related Disorders 19 4 448-449

Journal Article

The relationship between experiences of health services and quality of life: a cross-sectional survey with carers of three neurological conditions

2013

Health and Quality of Life Outcomes 11 103

Journal Article

Quality in the provision of headache care. 1: Systematic review of the literature and commentary

2012

Journal of Headache and Pain 13 6 437-447

Journal Article

The development and validation of a quality of life measure for the carers of people with Parkinson’s Disease (the PDQ-CARER)

2012

Parkinsonism and Related Disorders 18 5 483-487

Journal Article

Factors influencing quality of life in caregivers of people with Parkinson’s disease and implications for clinical guidelines

2012

Parkinson’s Disease 2012

Journal Article

The impact of perceived lack of support provided by health and social services to caregivers of people with motor neuron disease

2012

Amyotrophic Lateral Sclerosis 13 2 223-228

Journal Article

Does self-reported well-being of patients with Parkinson’s disease influence caregiver strain and quality of life?

2011

Parkinsonism and Related Disorders 17 5 348-352

Edited Book

Quality of Life Measures in Neurodegenerative and Related Conditions

2011

Book Section

Patient and public involvement in healthcare

2016

Healthcare Management

Book Section

Personalised care planning

2016

Shared Decision-Making in Healthcare – Achieving Evidence-Based Patient Choice

Book Section

Engaging older patients in their treatment and care

2015

Oxford Textbook of Geriatric Medicine

Book Section

Condition-specific measures

2014

Encyclopedia of Quality of Life and Well-Being Research 185-188

Book Section

Disease-specific questionnaires

2014

Encyclopedia of Quality of Life and Well-Being Research 188-188

Book Section

‘Quality’ in headache care. What is it and how can it be measured?

2011

Handbook of Headache 70-79

Book Section

Preface

2011

Quality of Life Measures in Neurodegenerative and Related Conditions xi-xii

Book Section

Outcome measures for informal carers of individuals with neurodegenerative conditions

2011

Quality of Life Measures in Neurodegenerative and Related Conditions 114-138

Book Section

Translating patient-reported outcome measures (PROMs) for cross-cultural studies

2011

Quality of Life Measures in Neurodegenerative and Related Conditions 139-146

Report

Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners

2017

Report

IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF)

2016

Report

Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary

2016

Report

Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners

2016

Report

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)

2015

Report

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) - Appendix

2015

Report

Making the Adult Social Care Outcomes Toolkit Easy Read

2015

Report

The development of the long-term conditions questionnaire (LTCQ). Interim report

2015

Report

Cancer PROMs: A Scoping Study. Report to Macmillan Cancer Support

2015

Report

Understanding and addressing underrepresentation in a postal survey of social care users. Summary

2014

Report

Pilot study of patient reported outcome measures (PROMs) in primary care

2013

Report

Report on using the GPPS to assess trends in EQ-5D scores for people with long-term conditions

2013

Report

Some considerations relating to the attribution of NHS activity to outcomes for people with long-term conditions

2013

Report

Personal outcome measures and postal surveys of social care

2013

Report

Understanding and addressing underrepresentation in a postal survey of social care users. Full report

2012

Report

"It’s very weird having other people in the space that you think is kind of private”: Choice and decision making around home based health and social care services (Summary)

2012

Project Outline

Living with Long-Term Conditions: Validation of the Long-Term Conditions Questionnaire (LTCQ)

2016

Project outline

Research Summary

Identifying the Impact of Adult Social Care (plain English summary)

2015

Research Summary

"It’s very weird having other people in the space that you think is kind of private”: Choice and decision making around home based health and social care services (Final report)

2012

Research Summary

Engagement of People with Long-Term Conditions in Health and Social Care Research: Barriers and Facilitators to Capturing the Views of Seldom Heard Populations. Summary

2012

DP or working paper

Heterogeneity in the effect of obesity on future long-term care use in England

2019

DP or working paper

ASCOT Easy Read: usability evaluation of an electronic adaptation

2019

DP or working paper

The impact and cost of adult social care: marginal effects of change in funding

2018

DP or working paper

Body mass, physical activity and future long-term care use

2018

DP or working paper

Engagement of people with long-term conditions in health and social care research: a review of barriers and facilitators to capturing the views of seldom-heard populations

2016

DP or working paper

How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project

2015

DP or working paper

Using a ‘wellbeing’ cost-effectiveness approach to improve resource allocation in social care

2015

DP or working paper

How can MAX help local authorities to use social care data to inform local policy? (Executive summary)

2015

DP or working paper

How can MAX help local authorities to use social care data to inform local policy? (Infographic)

2015

DP or working paper

Further analysis of ASCS and PSS SACE data: Case studies of local authority (LA) practice

2015

DP or working paper

Using Proxies to assess Quality of Life: A Review of the Issues and Challenges

2015

DP or working paper

How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project. Executive Summary

2015

DP or working paper

Generating ‘Adjusted’ Indicators from Social Care Survey Data

2014

DP or working paper

Review of factors important in use of survey data for quality and performance improvement: Report from literature review

2014

DP or working paper