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Research Interests
I am a Senior Research Fellow at the PSSRU, University of Kent. I joined the unit in 2012 to work on the Identifying the Impact of Adult Social Care project, which informed the inclusion of a new outcome indicator (1J) in the Adult Social Care Outcomes Framework (ASCOF) in England. Since then, I have worked on a number of research projects, including as part of the Quality and Outcomes of person-centred care policy Research Unit (www.qoru.ac.uk) and the Quality, Safety and Outcomes policy research unit (www.qso.ac.uk).
My research interests include the measurement and application of social care outcomes for service users and carers in policy and practice, unpaid care, and quality and safety of social care services. I am a member of the Adult Social Care Outcomes Toolkit (ASCOT) team (www.pssru.ac.uk/ascot) focussed on the development and psychometric evaluation of new or adapted measures (e.g. ASCOT-Carer, ASCOT-ER and ASCOT-Proxy). I have also been involved in the translation and cross-cultural validation of ASCOT into Dutch, German, Finnish and Japanese.
Stacey Rand's Publications
Journal Articles
Journal Article
Measuring safety in older adult care homes: a scoping review of the international literatur (2021)
Rand S, Smith N, Jones K, Dargan A, Hogan H
BMJ Open 11, e043206
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Social care-related outcomes in Finland. Construct validity, internal consistency, and structural validity of the Finnish ASCOT with older home care users (2021)
Nguyen N, Linnosmaa I, Jokimäki H, Rand S, Malley J, Razik K, Trukeschitz B, Forder J
Health and Social Care in the Community 29, (3), 712-728
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Family carers managing personal budgets for adults with learning disability or autism in England (2021)
Turnpenny A, Rand S, Whelton R, Babaian J, Beadle-Brown J
British Journal of Learning Disabilities 49(1), 52-61
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What does an outcomes-based perspective bring to an understanding of care and caring? (2020)
Rand S
International Journal of Care and Caring 4(4), 605-610(6)
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Translation, Cultural Adaptation and Construct Validity of the German Version of the Adult Social Care Outcomes Toolkit for Informal Carers (German ASCOT-Carer) (2020)
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J
Quality of Life Research
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Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (2020)
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J
Health Quality of Life Outcomes 18, 326
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Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis (2020)
Engel L, Rand S, Hoefman R, Bucholc J, Mihalpoulos C, Muldowney A, Ugalde A, McCaffrey J
Medical Decision Making
SAGE Journals
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Head-to-head comparison of the psychometric properties of three carer-related preference-based instruments (2020)
McCaffrey J, Bucholc J, Rand S, Hoefman R, Ugalde A, Muldowney A, Mihalpoulos C, Engel L,
Value in Health
Elsevier
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Enhancing primary care support for informal carers: A scoping study with professional stakeholders (2020)
Peters M, Rand S, Fitzpatrick R
Health and Social Care in the Community 28, 2, 642-650
Wiley
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Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER) (2020)
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N,
Journal of Intellectual & Developmental Disability 45, 2, 119-132
Taylor & Francis Online
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Letter to the Editor re: McEwan et al (2019) Moving on from Quality Assurance: Exploring Systems — Outcomes in Disability Services (2019)
Stacey Rand, Ann Marie Towers, James Caiels
Journal of Policy and Practice in Intellectual Disabilities
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The impact of social care services on carers’ quality of life (2019)
Rand S, Vadean F, Forder J
International Journal of Care and Caring
Policy Press
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Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3?L (2019)
Rand S, Malley J, Vadean F, Forder J
Health and Quality of Life Outcomes 17, 184
BMC
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Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT) (2019)
Caiels J, Rand S, Crowther T, Collins G, Forder J,
Springer Nature
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Are reasons for care-giving related to carers’ care-related quality of life and strain? Evidence from a survey of carers in England (2018)
Rand S, Malley J, Forder J
Health and Social Care in the Community 27, 151-160
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Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care. The 'expected' ASCOT method. (2017)
Malley J, Rand S, Netten A, Towers A, Forder J,
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Journal Article
The impact of long-term care on quality of life (2017)
Forder J, Vadean F, Rand S, Malley J
Health Economics 27, 3, 43-58
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Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England (2017)
Rand S, Malley J, Towers A, Netten A, Forder J
Health and Quality of Life Outcomes 15, 163
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A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers (2017)
Rand S, Forder J, Malley J
Quality of Life Research
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Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT) (2017)
Rand S, Caiels J, Collins G, Forder J
Health and Quality of Life Outcomes , 15:108
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