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Research Interests
I am a Senior Research Fellow at the PSSRU, University of Kent. I joined the unit in 2012 to work on the Identifying the Impact of Adult Social Care project, which informed the inclusion of a new outcome indicator (1J) in the Adult Social Care Outcomes Framework (ASCOF) in England. Since then, I have worked on a number of research projects, including as part of the Quality and Outcomes of person-centred care policy Research Unit (www.qoru.ac.uk) and the Quality, Safety and Outcomes policy research unit (www.qso.ac.uk).
My research interests include the measurement and application of social care outcomes for service users and carers in policy and practice, unpaid care, and quality and safety of social care services. I am a member of the Adult Social Care Outcomes Toolkit (ASCOT) team (www.pssru.ac.uk/ascot) focussed on the development and psychometric evaluation of new or adapted measures (e.g. ASCOT-Carer, ASCOT-ER and ASCOT-Proxy). I have also been involved in the translation and cross-cultural validation of ASCOT into Dutch, German, Finnish and Japanese.
Stacey Rand's Publications
Journal Articles
Journal Article
Determining the Cost-Effectiveness of Home Care: A Scoping Review (2024)
Gousia K, Teo H, Rand S, Vadean F
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Journal Article
The Role of Homecare in Addressing Food and Drink Care-Related Needs and Supporting Outcomes for Older Adults: An International Scoping Review (2024)
Rand S, Bertini L, Dargan A, Raats M
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Journal Article
Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care.
Quality of Life Research
(2024)Caiels J, Rand S, Mikelyte R
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Journal Article
National stakeholder consultation on how to measure care home residents' quality of life
Health and Social Care Delivery Research
(2024)Akdur G, Irvine L, Rand S, Towers A-M, Webster L, Spilsbury K
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Journal Article
Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff (2024)
Rand S, Towers AM, Allan S, Webster L, Palmer S, Carroll R, Gordon A, Akdur G, Goodman C.
Quality of Life Research
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Developing a framework for reflection on policy-relevant care research using a study of older adults’ food and drink care-related needs (2023)
Rand S, Bertini L, Dargan A, Raats M, Sharp R
International Journal of Care and Caring
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Feasibility, validity and reliability of the ASCOT-Proxy and ASCOT-Carer among unpaid carers of people living with dementia in England (2023)
Barbora Silarova, Stacey Rand, Ann-Marie Towers, Karen Jones
Health and Quality of Life Outcome: 21,, 54
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Applying Outcomes in Community-Based Social Care Practice in England (2023)
Stacey Rand, Grace Collins, Wenjing Zhang, Alisoun Milne, Barbora Silarova
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Journal Article
Outcome measures from international older adult care home intervention research: a scoping review (2023)
Sarah Kelly, Andy Cowan, Gizdem Akdur, Lisa Irvine, Guy Peryer, Silje Welsh, Stacey Rand, Iain A Lang, Ann-Marie Towers, Karen Spilsbury, Anne Killett, Adam Lee Gordon, Barbara Hanratty, Liz Jones, Julienne Meyer, Claire Goodman, Jennifer Kirsty Burton
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Journal Article
The quality of life of older carers and the people they support: An international scoping review (2022)
Wenjing Zhang, Stacey Rand, Alisoun Milne, Grace Collins, Barbora Silarova,
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Journal Article
Applying a dyadic outcomes approach to supporting older carers and care-recipients: A qualitative study of social care professionals in England (2022)
Stacey Rand, Wenjing Zhang, Grace Collins, Barbora Silarova, Alisoun Milne
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Journal Article
Exploring theological perspectives on adult social care (2022)
Stacey Rand
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Journal Article
Exploring the structural characteristics of the Adult Social Care Outcomes Toolkit (ASCOT) and ASCOT-Carer (2022)
S Rand, A-M Towers, J Malley, B Silarova
NIHR Open Research, 2:21
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Qualitative Review on Domains of Quality of Life Important for Patients, Social Care Users, and Informal Carers to Inform the Development of the EQ Health and Wellbeing (2022)
C Mukuria, J Connell, J Carlton, T Peasgood, A Scope, M Clowes, S E Rand, K Jones, J Brazier
Value in Health
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Assessing the Structural Characteristics of the Japanese Version of the Adult Social Care Outcomes Toolkit for Carers (2021)
H Nakamura-Thomas, M Yamaguchi, Ikushi Yamaguchi, S E Rand
Home Health Care Management & Practice, 34, Issue 1, 1-13
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Social care-related quality of life of people with dementia and their carers in England (2021)
S E Rand, Silarova B, Towers AM, Jones K
Health and Social Care in the community, 00, 1-13
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Care home residents' quality of life and its association with CQC ratings and workforce issues: the MiCareHQ mixed-methods study (2021)
Ann-Marie Towers, Nick Smith, Stephen Allan, Florin Vadean, Grace Collins, Stacey Rand, Jennifer Bostock, Helen Ramsbottom, Julien Forder, Stefania Lanza & Jackie Cassell.
Health Services and Delivery Research Volume
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What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality-adjusted life years? Application to the development of the EQ-HWB? (2021)
Peasgood T, Mukuria C, Carlton J, Connell J, Devlin N, Jones K, Lovett R, Naidoo B, Rand S, Rejon-Parilla J, Rowen D, Tsuchiya A, Brazier J
The European Journal of Health Economics
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Measuring safety in older adult care homes: a scoping review of the international literatur (2021)
Rand S, Smith N, Jones K, Dargan A, Hogan H
BMJ Open 11, e043206
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Social care-related outcomes in Finland. Construct validity, internal consistency, and structural validity of the Finnish ASCOT with older home care users (2021)
Nguyen N, Linnosmaa I, Jokimäki H, Rand S, Malley J, Razik K, Trukeschitz B, Forder J
Health and Social Care in the Community 29, (3), 712-728
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Family carers managing personal budgets for adults with learning disability or autism in England (2021)
Turnpenny A, Rand S, Whelton R, Babaian J, Beadle-Brown J
British Journal of Learning Disabilities 49(1), 52-61
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What does an outcomes-based perspective bring to an understanding of care and caring? (2020)
Rand S
International Journal of Care and Caring 4(4), 605-610(6)
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Translation, Cultural Adaptation and Construct Validity of the German Version of the Adult Social Care Outcomes Toolkit for Informal Carers (German ASCOT-Carer) (2020)
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J
Quality of Life Research
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Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (2020)
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J
Health Quality of Life Outcomes 18, 326
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Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis (2020)
Engel L, Rand S, Hoefman R, Bucholc J, Mihalpoulos C, Muldowney A, Ugalde A, McCaffrey J
Medical Decision Making
SAGE Journals
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Head-to-head comparison of the psychometric properties of three carer-related preference-based instruments (2020)
McCaffrey J, Bucholc J, Rand S, Hoefman R, Ugalde A, Muldowney A, Mihalpoulos C, Engel L,
Value in Health
Elsevier
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Enhancing primary care support for informal carers: A scoping study with professional stakeholders (2020)
Peters M, Rand S, Fitzpatrick R
Health and Social Care in the Community 28, 2, 642-650
Wiley
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Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER) (2020)
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N,
Journal of Intellectual & Developmental Disability 45, 2, 119-132
Taylor & Francis Online
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Letter to the Editor re: McEwan et al (2019) Moving on from Quality Assurance: Exploring Systems — Outcomes in Disability Services (2019)
Stacey Rand, Ann Marie Towers, James Caiels
Journal of Policy and Practice in Intellectual Disabilities
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The impact of social care services on carers’ quality of life (2019)
Rand S, Vadean F, Forder J
International Journal of Care and Caring
Policy Press
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Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3?L (2019)
Rand S, Malley J, Vadean F, Forder J
Health and Quality of Life Outcomes 17, 184
BMC
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Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT) (2019)
Caiels J, Rand S, Crowther T, Collins G, Forder J,
Springer Nature
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Are reasons for care-giving related to carers’ care-related quality of life and strain? Evidence from a survey of carers in England (2018)
Rand S, Malley J, Forder J
Health and Social Care in the Community 27, 151-160
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Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care. The 'expected' ASCOT method. (2017)
Malley J, Rand S, Netten A, Towers A, Forder J,
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Journal Article
The impact of long-term care on quality of life (2017)
Forder J, Vadean F, Rand S, Malley J
Health Economics 27, 3, 43-58
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Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England (2017)
Rand S, Malley J, Towers A, Netten A, Forder J
Health and Quality of Life Outcomes 15, 163
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A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers (2017)
Rand S, Forder J, Malley J
Quality of Life Research
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Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT) (2017)
Rand S, Caiels J, Collins G, Forder J
Health and Quality of Life Outcomes , 15:108
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The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice (2017)
Rand S, Malley J
Health and Social Care in the Community 25, 5, 1607-1619
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Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) (2016)
Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Rand S
Journal of Applied Research in Intellectual Disabilities
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Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) (2015)
Van Leeuwen K, Bosmans J, Jansen A, Rand S, Towers A, Smith N, Razik K, Trukeschitz B, van Tulder M, van der Horst H, Ostelo R
Health and Quality of Life Outcomes , 13:56
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Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) (2015)
Rand S, Malley J, Forder J, Netten A
Quality of Life Research 24, 11, 2601-2614
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Carers' quality of life and experiences of adult social care support in England (2014)
Rand S, Malley J
Health and Social Care in the Community 22, 4, 375-385
Read moreBook Sections
Book Section
Informal Welfare (2022)
Stacey Rand
Read moreReports
Report
Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary (2016)
Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A
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IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF) (2016)
Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A
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Making the Adult Social Care Outcomes Toolkit Easy Read (2015)
Whelton R, Turnpenny A, Caiels J, Crowther T, Richardson L, Beadle-Brown J, Apps J, Rand S
QORU working paper
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Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) - Appendix (2015)
Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S
QORU working paper
Read moreReport
Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) (2015)
Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S
QORU working paper
Read moreResearch Summaries
Research Summary
Identifying the Impact of Adult Social Care (plain English summary) (2015)
Rand S, Malley J
Read moreDP or working papers
DP or working paper
ASCOT Easy Read: usability evaluation of an electronic adaptation (2019)
Razik K, Turnpenny A, Bradshaw J, Rand S, Towers A, Caiels J, Smith N
QORU working paper 2953
Read moreDP or working paper
Factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER) (2017)
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N
Read moreDP or working paper
Using Proxies to assess Quality of Life: A Review of the Issues and Challenges (2015)
Rand S, Caiels J
Read moreDP or working paper
Measuring the Social Care Outcomes of Informal Carers: An Interim Technical Report for the Identifying the Impact of Adult Social Care (IIASC) (2012)
Rand S, Malley J
QORU working paper 2833, PSSRU
Read moreConference presentation outputs
Conference presentation output
The Adult Social Care Outcomes Toolkit for Carers (2015)
Rand S
Read moreConference presentation output
Quality of life of older adults who use social care support and their unpaid carers (2015)
Malley J, Rand S
Read moreManuscripts
Manuscript
What factors are associated with the quality of life of unpaid carers of social care service users? (2016)
Bäumker T, Fox D, Netten A, Rand S
Read moreBlogs
Blog
Using the analysis findings from the Adult Social Care Survey (ASCS) and Carers Survey (PSS SACE) to fulfil local authority (LA) information needs (2016)
Heath C, Rand S, Jones K
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Being a researcher: personal reflections (2016)
Rand S
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Supporting unpaid carers to have a life of their own alongside caring (2015)
Rand S
Read moreUnallocateds
Unallocated
Letter to the Editor re: McEwan et al (2019) Moving on from Quality Assurance: Exploring Systems — Outcomes in Disability Services (2020)
Rand S, Towers A-M, Caiels J
Read more