Dr Stacey Rand

Senior Research Fellow

01227 823877

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Research Interests

I am a Senior Research Fellow at the PSSRU in the University of Kent’s School of Social Policy, Sociology and Social Research (SSPSSR). I joined the unit in 2012 as a research associate to work on the Identifying the Impact of Adult Social Care project, which informed the inclusion of a new outcome indicator (1J) in the Adult Social Care Outcomes Framework in England (http://bit.ly/2y9zQ3j). Since then, I have worked on a number of research projects funded by the Department of Health under the Quality and Outcomes of person-centred care policy Research Unit (www.qoru.ac.uk). My research interests include quality of life outcomes of social care, especially in relation to family or friend carers, and also the translation and cross-cultural adaptation of ASCOT. I have been involved in the development and testing of the Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer), as well as easy-read and proxy-report versions of the instrument, and the translation of the ASCOT measures into Dutch, Norwegian and Japanese.

Stacey Rand's Publications

Journal Articles

Journal Article

Translation, Cultural Adaptation and Construct Validity of the German Version of the Adult Social Care Outcomes Toolkit for Informal Carers (German ASCOT-Carer) (2020)

Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J

Quality of Life Research

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Journal Article

Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (2020)

Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J

Health Quality of Life Outcomes 18, 326

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Journal Article

Family carers managing personal budgets for adults with learning disability or autism in England (2020)

Turnpenny A, Rand S, Whelton R, Babaian J, Beadle-Brown J

British Journal of Learning Disabilities

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Journal Article

Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis (2020)

Engel L, Rand S, Hoefman R, Bucholc J, Mihalpoulos C, Muldowney A, Ugalde A, McCaffrey J

Medical Decision Making

SAGE Journals

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Journal Article

Head-to-head comparison of the psychometric properties of three carer-related preference-based instruments (2020)

McCaffrey J, Bucholc J, Rand S, Hoefman R, Ugalde A, Muldowney A, Mihalpoulos C, Engel L,

Value in Health

Elsevier

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Journal Article

Enhancing primary care support for informal carers: A scoping study with professional stakeholders (2020)

Peters M, Rand S, Fitzpatrick R

Health and Social Care in the Community 28, 2, 642-650

Wiley

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Journal Article

Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER) (2020)

Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N,

Journal of Intellectual & Developmental Disability 45, 2, 119-132

Taylor & Francis Online

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Journal Article

Letter to the Editor re: McEwan et al (2019) Moving on from Quality Assurance: Exploring Systems — Outcomes in Disability Services (2019)

Stacey Rand,  Ann Marie Towers,  James Caiels

Journal of Policy and Practice in Intellectual Disabilities

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Journal Article

The impact of social care services on carers’ quality of life (2019)

Rand S, Vadean F, Forder J

International Journal of Care and Caring

Policy Press

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Journal Article

Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3?L (2019)

Rand S, Malley J, Vadean F, Forder J

Health and Quality of Life Outcomes 17, 184

BMC

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Journal Article

Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT) (2019)

Caiels J, Rand S, Crowther T, Collins G, Forder J,

Springer Nature

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Journal Article

Are reasons for care-giving related to carers’ care-related quality of life and strain? Evidence from a survey of carers in England (2018)

Rand S, Malley J, Forder J

Health and Social Care in the Community 27, 151-160

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Journal Article

Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care. The 'expected' ASCOT method. (2017)

Malley J, Rand S, Netten A, Towers A, Forder J,

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Journal Article

The impact of long-term care on quality of life (2017)

Forder J, Vadean F, Rand S, Malley J

Health Economics 27, 3, 43-58

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Journal Article

Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England (2017)

Rand S, Malley J, Towers A, Netten A, Forder J

Health and Quality of Life Outcomes 15, 163

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Journal Article

A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers (2017)

Rand S, Forder J, Malley J

Quality of Life Research

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Journal Article

Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT) (2017)

Rand S, Caiels J, Collins G, Forder J

Health and Quality of Life Outcomes , 15:108

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Journal Article

The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice (2017)

Rand S, Malley J

Health and Social Care in the Community 25, 5, 1607-1619

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Journal Article

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) (2016)

Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Rand S

Journal of Applied Research in Intellectual Disabilities

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Journal Article

Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) (2015)

Van Leeuwen K, Bosmans J, Jansen A, Rand S, Towers A, Smith N, Razik K, Trukeschitz B, van Tulder M, van der Horst H, Ostelo R

Health and Quality of Life Outcomes , 13:56

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