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Research Interests
I am a Senior Research Fellow at the PSSRU, University of Kent. I joined the unit in 2012 to work on the Identifying the Impact of Adult Social Care project, which informed the inclusion of a new outcome indicator (1J) in the Adult Social Care Outcomes Framework (ASCOF) in England. Since then, I have worked on a number of research projects, including as part of the Quality and Outcomes of person-centred care policy Research Unit (www.qoru.ac.uk) and the Quality, Safety and Outcomes policy research unit (www.qso.ac.uk).
My research interests include the measurement and application of social care outcomes for service users and carers in policy and practice, unpaid care, and quality and safety of social care services. I am a member of the Adult Social Care Outcomes Toolkit (ASCOT) team (www.pssru.ac.uk/ascot) focussed on the development and psychometric evaluation of new or adapted measures (e.g. ASCOT-Carer, ASCOT-ER and ASCOT-Proxy). I have also been involved in the translation and cross-cultural validation of ASCOT into Dutch, German, Finnish and Japanese.
Stacey Rand's Publications
Journal Articles
Journal Article
The quality of life of older carers and the people they support: An international scoping review (2022)
Wenjing Zhang, Stacey Rand, Alisoun Milne, Grace Collins, Barbora Silarova,
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Journal Article
Applying a dyadic outcomes approach to supporting older carers and care-recipients: A qualitative study of social care professionals in England (2022)
Stacey Rand, Wenjing Zhang, Grace Collins, Barbora Silarova, Alisoun Milne
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Journal Article
Exploring theological perspectives on adult social care (2022)
Stacey Rand
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Journal Article
Exploring the structural characteristics of the Adult Social Care Outcomes Toolkit (ASCOT) and ASCOT-Carer (2022)
S Rand, A-M Towers, J Malley, B Silarova
NIHR Open Research, 2:21
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Qualitative Review on Domains of Quality of Life Important for Patients, Social Care Users, and Informal Carers to Inform the Development of the EQ Health and Wellbeing (2022)
C Mukuria, J Connell, J Carlton, T Peasgood, A Scope, M Clowes, S E Rand, K Jones, J Brazier
Value in Health
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Assessing the Structural Characteristics of the Japanese Version of the Adult Social Care Outcomes Toolkit for Carers (2021)
H Nakamura-Thomas, M Yamaguchi, Ikushi Yamaguchi, S E Rand
Home Health Care Management & Practice, 34, Issue 1, 1-13
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Social care-related quality of life of people with dementia and their carers in England (2021)
S E Rand, Silarova B, Towers AM, Jones K
Health and Social Care in the community, 00, 1-13
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Care home residents' quality of life and its association with CQC ratings and workforce issues: the MiCareHQ mixed-methods study (2021)
Ann-Marie Towers, Nick Smith, Stephen Allan, Florin Vadean, Grace Collins, Stacey Rand, Jennifer Bostock, Helen Ramsbottom, Julien Forder, Stefania Lanza & Jackie Cassell.
Health Services and Delivery Research Volume
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What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality-adjusted life years? Application to the development of the EQ-HWB? (2021)
Peasgood T, Mukuria C, Carlton J, Connell J, Devlin N, Jones K, Lovett R, Naidoo B, Rand S, Rejon-Parilla J, Rowen D, Tsuchiya A, Brazier J
The European Journal of Health Economics
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Measuring safety in older adult care homes: a scoping review of the international literatur (2021)
Rand S, Smith N, Jones K, Dargan A, Hogan H
BMJ Open 11, e043206
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Social care-related outcomes in Finland. Construct validity, internal consistency, and structural validity of the Finnish ASCOT with older home care users (2021)
Nguyen N, Linnosmaa I, Jokimäki H, Rand S, Malley J, Razik K, Trukeschitz B, Forder J
Health and Social Care in the Community 29, (3), 712-728
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Family carers managing personal budgets for adults with learning disability or autism in England (2021)
Turnpenny A, Rand S, Whelton R, Babaian J, Beadle-Brown J
British Journal of Learning Disabilities 49(1), 52-61
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What does an outcomes-based perspective bring to an understanding of care and caring? (2020)
Rand S
International Journal of Care and Caring 4(4), 605-610(6)
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Translation, Cultural Adaptation and Construct Validity of the German Version of the Adult Social Care Outcomes Toolkit for Informal Carers (German ASCOT-Carer) (2020)
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J
Quality of Life Research
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Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (2020)
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J
Health Quality of Life Outcomes 18, 326
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Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis (2020)
Engel L, Rand S, Hoefman R, Bucholc J, Mihalpoulos C, Muldowney A, Ugalde A, McCaffrey J
Medical Decision Making
SAGE Journals
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Head-to-head comparison of the psychometric properties of three carer-related preference-based instruments (2020)
McCaffrey J, Bucholc J, Rand S, Hoefman R, Ugalde A, Muldowney A, Mihalpoulos C, Engel L,
Value in Health
Elsevier
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Enhancing primary care support for informal carers: A scoping study with professional stakeholders (2020)
Peters M, Rand S, Fitzpatrick R
Health and Social Care in the Community 28, 2, 642-650
Wiley
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Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER) (2020)
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N,
Journal of Intellectual & Developmental Disability 45, 2, 119-132
Taylor & Francis Online
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Letter to the Editor re: McEwan et al (2019) Moving on from Quality Assurance: Exploring Systems — Outcomes in Disability Services (2019)
Stacey Rand, Ann Marie Towers, James Caiels
Journal of Policy and Practice in Intellectual Disabilities
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