Quality and Outcomes Research Unit (QORU)

Principal investigator(s):
Julien Forder, José-Luis Fernández, Ray Fitzpatrick
Team:
Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
Start year:
2010
End year:
2018
Funder:
Secretary of State for Health
Partners:
PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
Website:
https://www.qoru.ac.uk

The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.

Publications

Edited Books

Edited Book

Quality of Life Measures in Neurodegenerative and Related Conditions

2011

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Book Sections

Book Section

Patient and public involvement in healthcare

2016

Healthcare Management

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Book Section

Personalised care planning

2016

Shared Decision-Making in Healthcare – Achieving Evidence-Based Patient Choice

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Book Section

Engaging older patients in their treatment and care

2015

Oxford Textbook of Geriatric Medicine

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Book Section

Condition-specific measures

2014

Encyclopedia of Quality of Life and Well-Being Research 185-188

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Book Section

Disease-specific questionnaires

2014

Encyclopedia of Quality of Life and Well-Being Research 188-188

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Book Section

‘Quality’ in headache care. What is it and how can it be measured?

2011

Handbook of Headache 70-79

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Book Section

Preface

2011

Quality of Life Measures in Neurodegenerative and Related Conditions xi-xii

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Book Section

Outcome measures for informal carers of individuals with neurodegenerative conditions

2011

Quality of Life Measures in Neurodegenerative and Related Conditions 114-138

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Book Section

Translating patient-reported outcome measures (PROMs) for cross-cultural studies

2011

Quality of Life Measures in Neurodegenerative and Related Conditions 139-146

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Reports

Report

Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners

2017

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Report

IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF)

2016

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Report

Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary

2016

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Report

Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners

2016

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Report

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)

2015

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Report

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) - Appendix

2015

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Report

Making the Adult Social Care Outcomes Toolkit Easy Read

2015

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Report

The development of the long-term conditions questionnaire (LTCQ). Interim report

2015

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Report

Cancer PROMs: A Scoping Study. Report to Macmillan Cancer Support

2015

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Report

Understanding and addressing underrepresentation in a postal survey of social care users. Summary

2014

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