Quality and Outcomes Research Unit (QORU)

Principal investigator(s):
Julien Forder, José-Luis Fernández, Ray Fitzpatrick
Team:
Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
Start year:
2010
End year:
2018
Funder:
Secretary of State for Health
Partners:
PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
Website:
https://www.qoru.ac.uk

The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.

Publications

Reports

Report

Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners

2016

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Report

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT)

2015

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Report

Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) - Appendix

2015

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Report

Making the Adult Social Care Outcomes Toolkit Easy Read

2015

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Report

The development of the long-term conditions questionnaire (LTCQ). Interim report

2015

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Report

Cancer PROMs: A Scoping Study. Report to Macmillan Cancer Support

2015

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Report

Understanding and addressing underrepresentation in a postal survey of social care users. Summary

2014

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Report

Pilot study of patient reported outcome measures (PROMs) in primary care

2013

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Report

Report on using the GPPS to assess trends in EQ-5D scores for people with long-term conditions

2013

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Report

Some considerations relating to the attribution of NHS activity to outcomes for people with long-term conditions

2013

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Report

Personal outcome measures and postal surveys of social care

2013

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Report

Understanding and addressing underrepresentation in a postal survey of social care users. Full report

2012

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Report

"It’s very weird having other people in the space that you think is kind of private”: Choice and decision making around home based health and social care services (Summary)

2012

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Project Outlines

Project Outline

Living with Long-Term Conditions: Validation of the Long-Term Conditions Questionnaire (LTCQ)

2016

Project outline

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Research Summaries

Research Summary

Identifying the Impact of Adult Social Care (plain English summary)

2015

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Research Summary

"It’s very weird having other people in the space that you think is kind of private”: Choice and decision making around home based health and social care services (Final report)

2012

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Research Summary

Engagement of People with Long-Term Conditions in Health and Social Care Research: Barriers and Facilitators to Capturing the Views of Seldom Heard Populations. Summary

2012

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DPs or Working Papers

DP or working paper

Heterogeneity in the effect of obesity on future long-term care use in England

2019

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DP or working paper

ASCOT Easy Read: usability evaluation of an electronic adaptation

2019

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DP or working paper

The impact and cost of adult social care: marginal effects of change in funding

2018

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