Quality and Outcomes Research Unit (QORU)
- Principal investigator(s):
- Julien Forder, José-Luis Fernández, Ray Fitzpatrick
- Team:
- Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
- Start year:
- 2010
- End year:
- 2018
- Funder:
- Secretary of State for Health
- Partners:
- PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
- Website:
- https://www.qoru.ac.uk
The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.
Publications
Journal Articles
Journal Article
Personalised care planning for adults with chronic or long-term health conditions
2015
Cochrane Database of Systematic Reviews
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Time to deliver patient centred care
2015
British Medical Journal 350 350:h530
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Feeling in control: comparing older people’s experiences in different care settings
2014
Ageing and Society 34 8 1427-1451
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Using online reviews in social care
2014
Social Policy and Administration 48 3 361-378
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Carers' quality of life and experiences of adult social care support in England
2014
Health and Social Care in the Community 22 4 375-385
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Using cost-effectiveness estimates from survey data to guide commissioning: an application to home care
2014
Health Economics 28 3 979-992
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The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey
2014
BMJ Open 4 2 e003968
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Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures
2014
Health and Quality of Life Outcomes 12 123
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What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey
2014
Health and Place 29 104-113
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Quality of life and burden in caregivers for individuals with Parkinson’s disease
2014
Focus on Parkinson’s Disease 24 1 44-48
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People with limiting long-term conditions report poorer experiences and more problems with hospital care
2014
BMC Health Services Research 14 14:33
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Collecting data on patient experience is not enough: they must be used to improve care
2014
British Medical Journal 348 348:g2225
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Patients’ experiences of health and social care in long-term neurological conditions in England: a cross-sectional study
2013
Journal of Health Services Research and Policy 18 1 28-33
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Personalised care planning for adults with long-term (chronic) conditions
2013
Cochrane Database of Systematic Reviews 5 CD010523
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The Stroke Impact Scale: Validation in a UK setting and development of a SIS short form and SIS index
2013
Stroke 44 2532-2535
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The PDQ-Carer: Development and validation of a summary index score
2013
Parkinsonism and Related Disorders 19 4 448-449
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The relationship between experiences of health services and quality of life: a cross-sectional survey with carers of three neurological conditions
2013
Health and Quality of Life Outcomes 11 103
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Quality in the provision of headache care. 1: Systematic review of the literature and commentary
2012
Journal of Headache and Pain 13 6 437-447
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The development and validation of a quality of life measure for the carers of people with Parkinson’s Disease (the PDQ-CARER)
2012
Parkinsonism and Related Disorders 18 5 483-487
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Factors influencing quality of life in caregivers of people with Parkinson’s disease and implications for clinical guidelines
2012
Parkinson’s Disease 2012
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