Quality and Outcomes Research Unit (QORU)

Principal investigator(s):
Julien Forder, José-Luis Fernández, Ray Fitzpatrick
Team:
Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
Start year:
2010
End year:
2018
Funder:
Secretary of State for Health
Partners:
PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
Website:
https://www.qoru.ac.uk

The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.

Publications

Journal Articles

Journal Article

Feeling in control: comparing older people’s experiences in different care settings

2014

Ageing and Society 34 8 1427-1451

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Journal Article

Using online reviews in social care

2014

Social Policy and Administration 48 3 361-378

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Journal Article

Carers' quality of life and experiences of adult social care support in England

2014

Health and Social Care in the Community 22 4 375-385

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Journal Article

Using cost-effectiveness estimates from survey data to guide commissioning: an application to home care

2014

Health Economics 28 3 979-992

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Journal Article

The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey

2014

BMJ Open 4 2 e003968

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Journal Article

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

2014

Health and Quality of Life Outcomes 12 123

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Journal Article

What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey

2014

Health and Place 29 104-113

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Journal Article

Quality of life and burden in caregivers for individuals with Parkinson’s disease

2014

Focus on Parkinson’s Disease 24 1 44-48

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Journal Article

People with limiting long-term conditions report poorer experiences and more problems with hospital care

2014

BMC Health Services Research 14 14:33

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Journal Article

Collecting data on patient experience is not enough: they must be used to improve care

2014

British Medical Journal 348 348:g2225

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Journal Article

Patients’ experiences of health and social care in long-term neurological conditions in England: a cross-sectional study

2013

Journal of Health Services Research and Policy 18 1 28-33

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Journal Article

Personalised care planning for adults with long-term (chronic) conditions

2013

Cochrane Database of Systematic Reviews 5 CD010523

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Journal Article

The Stroke Impact Scale: Validation in a UK setting and development of a SIS short form and SIS index

2013

Stroke 44 2532-2535

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Journal Article

The PDQ-Carer: Development and validation of a summary index score

2013

Parkinsonism and Related Disorders 19 4 448-449

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Journal Article

The relationship between experiences of health services and quality of life: a cross-sectional survey with carers of three neurological conditions

2013

Health and Quality of Life Outcomes 11 103

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Journal Article

Quality in the provision of headache care. 1: Systematic review of the literature and commentary

2012

Journal of Headache and Pain 13 6 437-447

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Journal Article

The development and validation of a quality of life measure for the carers of people with Parkinson’s Disease (the PDQ-CARER)

2012

Parkinsonism and Related Disorders 18 5 483-487

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Journal Article

Factors influencing quality of life in caregivers of people with Parkinson’s disease and implications for clinical guidelines

2012

Parkinson’s Disease 2012

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Journal Article

The impact of perceived lack of support provided by health and social services to caregivers of people with motor neuron disease

2012

Amyotrophic Lateral Sclerosis 13 2 223-228

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Journal Article

Does self-reported well-being of patients with Parkinson’s disease influence caregiver strain and quality of life?

2011

Parkinsonism and Related Disorders 17 5 348-352

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