Quality and Outcomes Research Unit (QORU)

Principal investigator(s):
Julien Forder, José-Luis Fernández, Ray Fitzpatrick
Team:
Julien Forder, Ray Fitzpatrick, José-Luis Fernández, Ann Netten, Julie Beadle-Brown, Nadia Brookes, Angela Coulter, Francesco D'Amico, Diane Fox, Clara Heath, Cheryl Hunter, Crispin Jenkinson, Martin Knapp, Juliette Malley, Michele Peters, Stacey Rand, Kamilla Razik, Lisa Richardson, Sara Ryan, Asuza Sato, Nick Smith, Ann-Marie Towers, Lisa Trigg, Agnes Turnpenny, Beckie Whelton, Sue Ziebland, Valentina Zigante
Start year:
2010
End year:
2018
Funder:
Secretary of State for Health
Partners:
PSSRU at Kent and LSE, University of Oxford, Tizard Centre (University of Kent)
Website:
https://www.qoru.ac.uk

The Quality and Outcomes Research Unit (QORU) has been funded by the Department of Health in England to develop and promote appropriate use of evidence, both quantitative and qualitative, of need, quality and outcomes in relation to long-term health conditions, with resulting beneficial impact on the quality of health and social services. The Unit has initially been funded to conduct a 5-year programme of research and will seek to: engage sufferers of long-term conditions in research; identify their conditions and circumstances and the effects these condition have on their quality of life; find the most appropriate ways to use information about people’s outcomes and experience to guide the development of the health and social care services in England; and gather evidence about the best strategies to support people with chronic diseases and other long-term conditions.

Publications

Journal Articles

Journal Article

Use of quality information in decision making about health and social care services - a systematic review

2015

Health and Social Care in the Community 23 4 349-361

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Journal Article

On interviewing people with pets: reflections from qualitative research on experiences with a long term condition

2015

Sociology of Health and Illness 37 1 67-80

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Journal Article

Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer)

2015

Quality of Life Research 24 11 2601-2614

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Journal Article

Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT)

2015

Health and Quality of Life Outcomes 13:56

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Journal Article

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: A qualitative study

2015

BMJ Open 5 e006986

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Journal Article

Personalised care planning for adults with chronic or long-term health conditions

2015

Cochrane Database of Systematic Reviews

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Journal Article

Time to deliver patient centred care

2015

British Medical Journal 350 350:h530

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Journal Article

Feeling in control: comparing older people’s experiences in different care settings

2014

Ageing and Society 34 8 1427-1451

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Journal Article

Using online reviews in social care

2014

Social Policy and Administration 48 3 361-378

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Journal Article

Carers' quality of life and experiences of adult social care support in England

2014

Health and Social Care in the Community 22 4 375-385

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Journal Article

Using cost-effectiveness estimates from survey data to guide commissioning: an application to home care

2014

Health Economics 28 3 979-992

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Journal Article

The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey

2014

BMJ Open 4 2 e003968

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Journal Article

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

2014

Health and Quality of Life Outcomes 12 123

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Journal Article

What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey

2014

Health and Place 29 104-113

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Journal Article

Quality of life and burden in caregivers for individuals with Parkinson’s disease

2014

Focus on Parkinson’s Disease 24 1 44-48

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Journal Article

People with limiting long-term conditions report poorer experiences and more problems with hospital care

2014

BMC Health Services Research 14 14:33

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Journal Article

Collecting data on patient experience is not enough: they must be used to improve care

2014

British Medical Journal 348 348:g2225

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Journal Article

Patients’ experiences of health and social care in long-term neurological conditions in England: a cross-sectional study

2013

Journal of Health Services Research and Policy 18 1 28-33

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Journal Article

Personalised care planning for adults with long-term (chronic) conditions

2013

Cochrane Database of Systematic Reviews 5 CD010523

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Journal Article

The Stroke Impact Scale: Validation in a UK setting and development of a SIS short form and SIS index

2013

Stroke 44 2532-2535

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