References

ASCOT development

Rand S, Malley J, Towers A, Netten A, Forder J (2017) Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England, Quality of Life Outcomes, 15:163, DOI: https://doi.org/10.1186/s12955-017-0739-0

Turnpenny, A., Caiels, J., Whelton, B., Richardson, L., Beadle‐Brown, J., Crowther, T., Forder, J., Apps, J., & Rand, S. (2016). Developing an easy read version of the adult social care outcomes toolkit (ASCOT). Journal of Applied Research in Intellectual Disabilities31(1), e36-e48, DOI: https://doi.org/10.1111/jar.12294

Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S (2015) Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT), PSSRU Discussion Paper 2891, University of Kent, Canterbury.

Malley J, Towers A, Netten A, Brazier J, Forder J, Flynn, T (2012) An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people, Health and Quality of Life Outcomes, 10:21. DOI: http://dx.doi.org/10.1186/1477-7525-10-21

Netten A, Burge P, Malley J, Potoglou D, Towers A, Brazier J, Flynn T, Forder J, Wall B (2012) Outcomes of Social Care for Adults: Developing a Preference-Weighted Measure, Health Technology Assessment, 16, 16, 1-165 DOI: http://dx.doi.org/10.3310/hta16160

Potoglou D, Burge P, Flynn T, Netten A, Malley J, Forder J & Brazier J (2011) Best-worst scaling vs discrete choice experiments: An empirical comparison using social care, Social Science and Medicine, 72, 10, 1717-1727. DOI: https://doi.org/10.1016/j.socscimed.2011.03.027

Forder J, Caiels J (2011) Measuring the outcomes of long-term care, Social Science and Medicine, 73, 12, 1766-1774. DOI: http://dx.doi.org/10.1016/j.socscimed.2011.09.023

Burge P, Potoglou D, Kim C, Hess S (2010) How do the public value different outcomes of social care? Estimation of preference weights for ASCOT, RAND working paper, Rand Europe, Cambridge.

Caiels J, Forder J, Malley J, Netten A, Windle K (2010) Measuring the outcome of low-level services: Final Report, PSSRU Discussion Paper 2699, University of Kent, Canterbury.

Netten A, Beadle-Brown J, Trukeschitz B, Towers A-M, Welch E, Forder J, Smith J, Alden E (2010) Measuring the Outcomes of Care Homes, PSSRU Discussion Paper 2696/2, University of Kent, Canterbury.

Netten A, Burge P, Malley J, Potoglou D, Brazier J, Flynn T and Forder J (2009) Outcomes of Social Care for Adults (OSCA) Interim findings, PSSRU Discussion Paper 2648/2, University of Kent, Canterbury.

Background papers

Malley J, Caiels J, Fox D, McCarthy M, Smith N, Beadle-Brown J, Netten A, Towers A-M (2010) A Report on the Development Studies for the National Adult Social Care User Experience Survey, PSSRU Discussion Paper 2721, University of Kent, Canterbury.

Forder J, Netten A, Caiels J, Smith J and Malley J (2007) Theoretical concepts in assessing the outcomes of social care. PSSRU Discussion Paper 2480, University of Kent, Canterbury.

Malley J, Sandhu S and Netten A (2006) Younger adults’ understanding of questions for a service user experience survey, Report to The Health and Social Care Information Centre, PSSRU Discussion Paper 2360, University of Kent, Canterbury.

Ryan M, Netten A, Skåtun D and Smith P (2006) Using discrete choice experiments to estimate a preference-based measure of outcome – An application to social care for older people, Journal of Health Economics, 25, 5, 927-944. DOI: https://doi.org/10.1016/j.jhealeco.2006.01.001

Netten A, McDaid D, Fernández J-L, Forder J, Knapp M, Matosevic T. and Shapiro J (2005) Measuring and understanding social services outputs, PSSRU Discussion Paper 2132/3, University of Kent, Canterbury.

Netten A, Ryan M, Smith P, Skatun D, Healey A, Knapp M and Wykes T (2002) The development of a measure of social care outcome for older people, PSSRU Discussion Paper 1690, University of Kent, Canterbury.

Developing ASCOT carer measures

Rand S, Malley J, Netten A, Forder, J (2015) Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Quality of Life Research, 24, 11, 2601-2614, DOI: http://dx.doi.org/10.1007/s11136-015-1011-x

Rand S, Malley J, Netten A (2012) Measuring the Social Care Outcomes of Informal Carers, PSSRU Discussion Paper 2833, University of Kent, Canterbury.

Fox D, Rand S, Malley J & Netten A (2014) Developing a social care outcome measure for unpaid carers, 3rd International Conference on Evidence-Based Policy in Long-Term Care, 31st August – 4th September 2014, London

ASCOT Applications in the UK

Rand S, Malley J, Forder J, (2018) Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England. Health and Social Care in the Community,  1–10. DOI: 10.1111/hsc.12634

Stevens K, Brazier J, Rowen D (2018) Estimating an exchange rate between the EQ-5D-3L and ASCOT, European Journal of Health Economics, 19, 653–661, DOI: https://doi.org/10.1007/s10198-017-0910-x

Rand S, Forder J, Malley J (2017) A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers, Quality of Life Research, DOI: https://link.springer.com/article/10.1007/s11136-017-1669-3

Smith N, Towers A, Palmer S, Beecham J, Welch E (2017) Being occupied: supporting ‘meaningful activity’ in care homes for older people in England, Ageing and Society, DOI: https://doi.org/10.1017/S0144686X17000678

Callaghan L, Brookes, N & Palmer, S (2017) Older people receiving family-based support in the community: a survey of quality of life among users of ‘Shared Lives’ in England, Health and Social Care, DOI: https://doi.org/10.1111/hsc.12422

Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A (2016) IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF), PSSRU Discussion Paper 2892, University of Kent, Canterbury.

Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A (2016) IIASC report: Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary, PSSRU Discussion Paper 2892, University of Kent, Canterbury.

Whitehead P J,  James M, Belshaw S, Dawson T, Day M R, & Walker M F (2016) Bathing adaptations in the homes of older adults (BATH-OUT): protocol for a feasibility randomised controlled trial (RCT), BMJ Open, 6, 10, DOI:  https://10.1136/bmjopen-2016-013448

Towers A, Smith N, Palmer S, Welch E, & Netten A (2016) The accessibility and feasibility of using the Adult Social Care Outcomes Toolkit (ASCOT) to inform practice in care homes. BMC Health Services Research, 16:523,  (available online 29 September 2016), DOI: https://10.1186/s12913-016-1763-1

Mukuria C, Rowen D, Peasgood T, Brazier J (2016) An empirical comparison of well-being measures used in UK, Project Report. Policy Research Unit in Economic Evaluation of Health and Care Interventions (EEPRU) (27). Policy Research Unit in Economic Evaluation of Health and Care Interventions

Yang W, Forder J, & Nizalova O (2016) Measuring the productivity of residential long-term care in England: methods for quality adjustment and regional comparison, The European Journal of Health Economics, DOI:  https://10.1007/s10198-016-0816-z

Bauer A, Knapp M, Wistow G, Perkins M, King D, & Iemmi V (2016) Costs and economic consequences of a help-at-home scheme for older people in England, Health and Social Care in the Community, DOI:  https://10.1111/hsc.12372

Rand S, Malley J (2016) The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice, Health and Social Care in the Community, DOI: http://dx.doi.org/10.1111/hsc.12354

Rand S, Malley J (2014) Carers’ quality of life and experiences of adult social care support in England, Health and Social Care in the Community, 22, 4, 375-385, DOI: http://dx.doi.org/10.1111/hsc.12089

Johnstone L, Page C (2014) Using Adult Social Care Outcomes Toolkit (ASCOT) in the assessment and review process. Research, Policy and Planning, 2013/14, 30, 3, 179-192.

Van Leeuwen K, Malley J, Bosmans J, Jansen A, Ostelo R, van der Horst H, Netten A (2014) What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey. Health and Place, 29, 104-113 DOI: http://dx.doi.org/10.1016/j.healthplace.2014.06.004

Netten A, Trukeschitz B, Beadle-Brown J, Forder J, Towers A, Welch E (2012) Quality of life outcomes for residents and quality ratings of care homes: is there a relationship? Age and Ageing DOI: http://dx.doi.org/10.1093/ageing/afs050

Netten A, Jones K, Knapp M, Fernandez J-L, Challis D, Glendinning C, Jacobs S, Manthorpe J, Moran N, Stevens M, Wilberforce M, (2011) Personalisation through Individual Budgets: Does It Work and for Whom? British Journal of Social Work, 42, 8, 1556-1573. DOI: http://dx.doi.org/10.1093/bjsw/bcr159

Netten A, Beadle-Brown J, Welch E (2010) Measuring the productivity of workforce development in care homes: Final report. PSSRU Discussion Paper No. 2733/3, University of Kent, Canterbury.

Malley J, Netten A (2009) Measuring Outcomes of Social Care, Research, Policy and Planning, 27, 2, 85-96.

Glendinning C, Challis D, Fernández JL, Jacobs K, Knapp M, Manthorpe J, Moran N, Netten A, Stevens M and Wilberforce, M (2008) Evaluation of the Individual Budgets Pilot Programme: Final Report, Social Policy Research Unit, University of York, York, http://php.york.ac.uk/inst/spru/pubs/1119/.

Malley J, Netten A (2008) Measuring and monitoring outputs in social care: the problem of measuring quality, International Review of Administrative Sciences, 74, 4, 535-553, Special Edition from European Group of Public Administration Conference, Madrid, 19-22 September 2007, http://ras.sagepub.com/content/74/4/535

International Use

Translations of ASCOT

Van Leeuwen K, Bosmans J, Jansen A, Rand S, Towers A, Smith N, Razik K, Trukeschitz B, van Tulder M, van der Horst H, Ostelo R (2015) Dutch translation of cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT), Health and Quality of Life Outcomes, 13:56, DOI:  http://10.1186/s12955-015-0249-x

ASCOT Development

van Loon M,  van Leeuwen K, Ostelo R, Bosmans J, Widdershoven G (2017) Quality of life in a broader perspective: Does ASCOT reflect the capability approach? Quality of Life Research, https://link.springer.com/article/10.1007/s11136-017-1756-5

Kaambwa B, Gill L, McCaffrey N, Lanscar E, Cameron I D, Crotty M, Gray L, Ratcliffe J (2015) An empirical comparison of the OPQoL-Brief, EQ-5D-3 L and ASCOT in a community dwelling population of older people. Health and Quality of Life Outcomes, 13:164, http://hqlo.biomedcentral.com/articles/10.1186/s12955-015-0357-7

Van Leeuwen K M, Bosmans J E, Jansen A P D, Hoogendijk E O, van Tulder M W, van der Horst H E, Ostelo R W (2015) Comparing measurement properties of the EQ-5D-3L, ICECAP-O, and ASCOT in frail older adults, Value in health, 18:1, 35–43, DOI:  http://10.1016/j.jval.2014.09.006

Van Leeuwen K M, Jansen A P D, Muntinga M E, Bosmans J E, Westerman M J, van Tulder M W, van der Horst H E (2015) Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults. BMC Health Services Research, 15:201, http://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-015-0862-8

ASCOT Applications

Bulamu N B, Kaambwa B, Ratcliffe J (2015) A systematic review of instruments for measuring outcomes in economic evaluation within aged care, Health and Quality of Life Outcomes, 13:179, DOI: http://10.1186/s12955-015-0372-8

Makai P, Brouwer W B F, Koopmanschap M A, Stolk E A, Nieboer A P (2014) Quality of Life instruments for economic evaluations in health and social care for older people: a systematic review, Social Science & Medicine, 102, 83-93, DOI: http://10.1016/j.socscimed.2013.11.050.

Milte C M, Walker R, Luszcz M A, Lancsar E, Kaambwa B, Ratcliffe J (2014) How important is health status in defining quality of life for older people? An exploratory study of the views of older South Australians. Applied Health Econ Health Policy12(1) ,73-84, DOI:  http://10.1007/s40258-013-0068-3

Redshaw S, Fine M (2013) Measuring the Outcomes of Case Managed Community Care Towards a practical instrument for Australian home support, Centre for Research on Social Inclusion Department of Sociology, Macquarie University, Sydney

Steffansson M, Pulliainen M, Kettunen A, Linnosmaa I, Halonen M (2016) The Association between Freedom of Choice and Effectiveness of Home Care Services,
International Journal of Integrated Care 16(1):5, DOI: http://doi.org/10.5334/ijic.2448

Trukeschitz B (2011) Worauf es letztlich ankommt. Ergebnisqualität in der Langzeitpflege und-betreuungKurswechsel, 4:2011, 22 – 35.

Comments are closed.