Malley J, Rand S, Forder J, Netten A, Towers A-M (2019) Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care, Journal of Long-Term Care, pp. 67-83 https://journal.ilpnetwork.org/articles/abstract/11/
Batchelder L, Malley J, Burge P, Lu H, Saloniki E, Linnosmaa L, Trukeschitz B, Forder J. (2019) Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers, Value in Health 2019: Nov, DOI: https://doi.org/10.1016/j.jval.2019.07.014
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N. (2019) Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER), Journal of Intellectual & Developmental Disability 2019:1-14, DOI: https://doi.org/10.3109/13668250.2019.1592126
Saloniki, E. Malley, J. Burge, P. Lu, H. Batchelder, L. Linnosmaa, I. Trukeschitz, B. (2019) Comparing internet and face-to-face surveys as methods for eliciting preferences for social care-related quality of life: evidence from England using the ASCOT service user measure, Quality of Life Research DOI: https://doi.org/10.1007/s11136-019-02172-2
Caiels, J. Rand S. Crowther, T. Collins, G. Forder, J. (2019) Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT), DOI: https://doi.org/10.1186/s12913-019-4025-1
Rand S, Malley J, Towers A, Netten A, Forder J (2017) Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England, Quality of Life Outcomes, 15:163, DOI: https://doi.org/10.1186/s12955-017-0739-0
Turnpenny, A., Caiels, J., Whelton, B., Richardson, L., Beadle‐Brown, J., Crowther, T., Forder, J., Apps, J., & Rand, S. (2016). Developing an easy read version of the adult social care outcomes toolkit (ASCOT). Journal of Applied Research in Intellectual Disabilities, 31(1), e36-e48, DOI: https://doi.org/10.1111/jar.12294
Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S (2015) Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT), PSSRU Discussion Paper 2891, University of Kent, Canterbury.
Malley J, Towers A, Netten A, Brazier J, Forder J, Flynn, T (2012) An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people, Health and Quality of Life Outcomes, 10:21. DOI: http://dx.doi.org/10.1186/1477-7525-10-21
Netten A, Burge P, Malley J, Potoglou D, Towers A, Brazier J, Flynn T, Forder J, Wall B (2012) Outcomes of Social Care for Adults: Developing a Preference-Weighted Measure, Health Technology Assessment, 16, 16, 1-165 DOI: http://dx.doi.org/10.3310/hta16160
Potoglou D, Burge P, Flynn T, Netten A, Malley J, Forder J & Brazier J (2011) Best-worst scaling vs discrete choice experiments: An empirical comparison using social care, Social Science and Medicine, 72, 10, 1717-1727. DOI: https://doi.org/10.1016/j.socscimed.2011.03.027
Forder J, Caiels J (2011) Measuring the outcomes of long-term care, Social Science and Medicine, 73, 12, 1766-1774. DOI: http://dx.doi.org/10.1016/j.socscimed.2011.09.023
Burge P, Potoglou D, Kim C, Hess S (2010) How do the public value different outcomes of social care? Estimation of preference weights for ASCOT, RAND working paper, Rand Europe, Cambridge.
Caiels J, Forder J, Malley J, Netten A, Windle K (2010) Measuring the outcome of low-level services: Final Report, PSSRU Discussion Paper 2699, University of Kent, Canterbury.
Netten A, Beadle-Brown J, Trukeschitz B, Towers A-M, Welch E, Forder J, Smith J, Alden E (2010) Measuring the Outcomes of Care Homes, PSSRU Discussion Paper 2696/2, University of Kent, Canterbury.
Netten A, Burge P, Malley J, Potoglou D, Brazier J, Flynn T and Forder J (2009) Outcomes of Social Care for Adults (OSCA) Interim findings, PSSRU Discussion Paper 2648/2, University of Kent, Canterbury.
Forder J, Netten A, Caiels J, Smith J and Malley J (2007) Theoretical concepts in assessing the outcomes of social care. PSSRU Discussion Paper 2480, University of Kent, Canterbury.
Malley J, Sandhu S and Netten A (2006) Younger adults’ understanding of questions for a service user experience survey, Report to The Health and Social Care Information Centre, PSSRU Discussion Paper 2360, University of Kent, Canterbury.
Ryan M, Netten A, Skåtun D and Smith P (2006) Using discrete choice experiments to estimate a preference-based measure of outcome – An application to social care for older people, Journal of Health Economics, 25, 5, 927-944. DOI: https://doi.org/10.1016/j.jhealeco.2006.01.001
Netten A, McDaid D, Fernández J-L, Forder J, Knapp M, Matosevic T. and Shapiro J (2005) Measuring and understanding social services outputs, PSSRU Discussion Paper 2132/3, University of Kent, Canterbury.
Netten A, Ryan M, Smith P, Skatun D, Healey A, Knapp M and Wykes T (2002) The development of a measure of social care outcome for older people, PSSRU Discussion Paper 1690, University of Kent, Canterbury.
Developing ASCOT carer measures
Rand S, Malley J, Netten A, Forder, J (2015) Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Quality of Life Research, 24, 11, 2601-2614, DOI: http://dx.doi.org/10.1007/s11136-015-1011-x
Rand S, Malley J, Netten A (2012) Measuring the Social Care Outcomes of Informal Carers, PSSRU Discussion Paper 2833, University of Kent, Canterbury.
Fox D, Rand S, Malley J & Netten A (2014) Developing a social care outcome measure for unpaid carers, 3rd International Conference on Evidence-Based Policy in Long-Term Care, 31st August – 4th September 2014, London
ASCOT Applications in the UK
Rand S, Malley J, Forder J, (2018) Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England. Health and Social Care in the Community, 1–10. DOI: 10.1111/hsc.12634
Stevens K, Brazier J, Rowen D (2018) Estimating an exchange rate between the EQ-5D-3L and ASCOT, European Journal of Health Economics, 19, 653–661, DOI: https://doi.org/10.1007/s10198-017-0910-x
Rand S, Forder J, Malley J (2017) A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers, Quality of Life Research, DOI: https://link.springer.com/article/10.1007/s11136-017-1669-3
Smith N, Towers A, Palmer S, Beecham J, Welch E (2017) Being occupied: supporting ‘meaningful activity’ in care homes for older people in England, Ageing and Society, DOI: https://doi.org/10.1017/S0144686X17000678
Callaghan L, Brookes, N & Palmer, S (2017) Older people receiving family-based support in the community: a survey of quality of life among users of ‘Shared Lives’ in England, Health and Social Care, DOI: https://doi.org/10.1111/hsc.12422
Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A (2016) IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF), PSSRU Discussion Paper 2892, University of Kent, Canterbury.
Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A (2016) IIASC report: Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary, PSSRU Discussion Paper 2892, University of Kent, Canterbury.
Whitehead P J, James M, Belshaw S, Dawson T, Day M R, & Walker M F (2016) Bathing adaptations in the homes of older adults (BATH-OUT): protocol for a feasibility randomised controlled trial (RCT), BMJ Open, 6, 10, DOI: https://10.1136/bmjopen-2016-013448
Towers A, Smith N, Palmer S, Welch E, & Netten A (2016) The accessibility and feasibility of using the Adult Social Care Outcomes Toolkit (ASCOT) to inform practice in care homes. BMC Health Services Research, 16:523, (available online 29 September 2016), DOI: https://10.1186/s12913-016-1763-1
Mukuria C, Rowen D, Peasgood T, Brazier J (2016) An empirical comparison of well-being measures used in UK, Project Report. Policy Research Unit in Economic Evaluation of Health and Care Interventions (EEPRU) (27). Policy Research Unit in Economic Evaluation of Health and Care Interventions
Yang W, Forder J, & Nizalova O (2016) Measuring the productivity of residential long-term care in England: methods for quality adjustment and regional comparison, The European Journal of Health Economics, DOI: https://10.1007/s10198-016-0816-z
Bauer A, Knapp M, Wistow G, Perkins M, King D, & Iemmi V (2016) Costs and economic consequences of a help-at-home scheme for older people in England, Health and Social Care in the Community, DOI: https://10.1111/hsc.12372
Rand S, Malley J (2016) The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice, Health and Social Care in the Community, DOI: http://dx.doi.org/10.1111/hsc.12354
Rand S, Malley J (2014) Carers’ quality of life and experiences of adult social care support in England, Health and Social Care in the Community, 22, 4, 375-385, DOI: http://dx.doi.org/10.1111/hsc.12089
Johnstone L, Page C (2014) Using Adult Social Care Outcomes Toolkit (ASCOT) in the assessment and review process. Research, Policy and Planning, 2013/14, 30, 3, 179-192.
Van Leeuwen K, Malley J, Bosmans J, Jansen A, Ostelo R, van der Horst H, Netten A (2014) What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey. Health and Place, 29, 104-113 DOI: http://dx.doi.org/10.1016/j.healthplace.2014.06.004
Netten A, Trukeschitz B, Beadle-Brown J, Forder J, Towers A, Welch E (2012) Quality of life outcomes for residents and quality ratings of care homes: is there a relationship? Age and Ageing DOI: http://dx.doi.org/10.1093/ageing/afs050
Netten A, Jones K, Knapp M, Fernandez J-L, Challis D, Glendinning C, Jacobs S, Manthorpe J, Moran N, Stevens M, Wilberforce M, (2011) Personalisation through Individual Budgets: Does It Work and for Whom? British Journal of Social Work, 42, 8, 1556-1573. DOI: http://dx.doi.org/10.1093/bjsw/bcr159
Netten A, Beadle-Brown J, Welch E (2010) Measuring the productivity of workforce development in care homes: Final report. PSSRU Discussion Paper No. 2733/3, University of Kent, Canterbury.
Malley J, Netten A (2009) Measuring Outcomes of Social Care, Research, Policy and Planning, 27, 2, 85-96.
Glendinning C, Challis D, Fernández JL, Jacobs K, Knapp M, Manthorpe J, Moran N, Netten A, Stevens M and Wilberforce, M (2008) Evaluation of the Individual Budgets Pilot Programme: Final Report, Social Policy Research Unit, University of York, York, http://php.york.ac.uk/inst/spru/pubs/1119/.
Malley J, Netten A (2008) Measuring and monitoring outputs in social care: the problem of measuring quality, International Review of Administrative Sciences, 74, 4, 535-553, Special Edition from European Group of Public Administration Conference, Madrid, 19-22 September 2007, http://ras.sagepub.com/content/74/4/535
Translations of ASCOT
Nakamura-Thomas, Hiromi, Morikawa, Mie, Moriyama, Yoko, Shiroiwa, Takeru, Kyougoku, Makoto, Razik, Kamilla and Malley, Juliette (2019) Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users. Health and Quality of Life Outcomes, 17 (59). https://doi.org/10.1186/s12955-019-1128-7
Thomas, H N.* Morikawa, M. Moriyama, Y. Shiroiwa, T. Kyougoku, M. Razik, K. and Juliette Malley (2019) Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users, Health and Quality of Life Outcomes, DOI: https://doi.org/10.1186/s12955-019-1128-7
Van Leeuwen K, Bosmans J, Jansen A, Rand S, Towers A, Smith N, Razik K, Trukeschitz B, van Tulder M, van der Horst H, Ostelo R (2015) Dutch translation of cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT), Health and Quality of Life Outcomes, 13:56, DOI: http://10.1186/s12955-015-0249-x
Shiroiwa Takeru, Moriyama Yoko, Nakamura-Thomas Hiromi, Morikawa Mie, Fukuda Takashi, Batchelder Laurie, Saloniki Eirini-Christina, Malley Juliette (2019) Development of Japanese utility weights for the Adult Social Care Outcomes Toolkit (ASCOT) SCT4. Quality of Life Research, https://doi.org/10.1007/s11136-019-02287-6
Assma Hajji, Birgit Trukeschitz, Juliette Malley, Laurie Batchelder, Eirini-Christina Saloniki, Ismo Linnosmaa, Hui Lu (2020) Population-based preference weights for the adult social outcomes toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment. Social Science a& Medicine, Available online 7 January 2020 DOI: https://doi.org/10.1016/j.socscimed.2020.112792
Yamaguchi M, Rand S (2019) Issues and challenges in comparing carers’ quality of life in England and Japan: lessons from developing the Japanese version of the ASCOT-Carer. International Journal of Care and Caring, 3:3, 459-464, DOI: https://doi.org/10.1332/239788219X15597493546625
Kaambwa B, Gill L, McCaffrey N, Lanscar E, Cameron I D, Crotty M, Gray L, Ratcliffe J (2015) An empirical comparison of the OPQoL-Brief, EQ-5D-3 L and ASCOT in a community dwelling population of older people. Health and Quality of Life Outcomes, 13:164, http://hqlo.biomedcentral.com/articles/10.1186/s12955-015-0357-7
Van Leeuwen K M, Bosmans J E, Jansen A P D, Hoogendijk E O, van Tulder M W, van der Horst H E, Ostelo R W (2015) Comparing measurement properties of the EQ-5D-3L, ICECAP-O, and ASCOT in frail older adults, Value in health, 18:1, 35–43, DOI: http://10.1016/j.jval.2014.09.006
Van Leeuwen K M, Jansen A P D, Muntinga M E, Bosmans J E, Westerman M J, van Tulder M W, van der Horst H E (2015) Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults. BMC Health Services Research, 15:201, http://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-015-0862-8
Mulhern B, Norman R, De Abreu Lourenco R, Malley J, Street D, Viney R (2019) Investigating the relative value of health and social care related quality of life using a discrete choice experiment. Social Science & Medicine, 223, 28-37, DOI: https://doi.org/10.1016/j.socscimed.2019.05.032
Bulamu N B, Kaambwa B, Ratcliffe J (2015) A systematic review of instruments for measuring outcomes in economic evaluation within aged care, Health and Quality of Life Outcomes, 13:179, DOI: http://10.1186/s12955-015-0372-8
Makai P, Brouwer W B F, Koopmanschap M A, Stolk E A, Nieboer A P (2014) Quality of Life instruments for economic evaluations in health and social care for older people: a systematic review, Social Science & Medicine, 102, 83-93, DOI: http://10.1016/j.socscimed.2013.11.050.
Milte C M, Walker R, Luszcz M A, Lancsar E, Kaambwa B, Ratcliffe J (2014) How important is health status in defining quality of life for older people? An exploratory study of the views of older South Australians. Applied Health Econ Health Policy, 12(1) ,73-84, DOI: http://10.1007/s40258-013-0068-3
Redshaw S, Fine M (2013) Measuring the Outcomes of Case Managed Community Care Towards a practical instrument for Australian home support, Centre for Research on Social Inclusion Department of Sociology, Macquarie University, Sydney
Steffansson M, Pulliainen M, Kettunen A, Linnosmaa I, Halonen M (2016) The Association between Freedom of Choice and Effectiveness of Home Care Services,
International Journal of Integrated Care 16(1):5, DOI: http://doi.org/10.5334/ijic.2448
Trukeschitz B (2011) Worauf es letztlich ankommt. Ergebnisqualität in der Langzeitpflege und-betreuung. Kurswechsel, 4:2011, 22 – 35.