Professor Karen Jones

Joint Director

01227 827953

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Research Interests

Karen's research interests include costing methodologies, quality and outcomes in health and social care and economic evaluations.

Karen Jones' Publications

Journal Articles

Journal Article

Feasibility, validity and reliability of the ASCOT-Proxy and ASCOT-Carer among unpaid carers of people living with dementia in England (2023)

Barbora Silarova, Stacey Rand, Ann-Marie Towers, Karen Jones

Health and Quality of Life Outcome: 21,, 54

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Journal Article

How local partnerships to improve urgent and emergency care have impacted delayed transfers of care from hospitals in England: an analysis based on a synthetic control estimation method (2022)

Gintare Malisauskaite, Karen Jones, Stephen Allan, Daniel Roland, Yvonne Birks, Kate Baxter, Kate Gridley

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Journal Article

Social care causes of delayed transfer of care (DTOC) from hospital for older people: Unpicking the nuances of ‘provider capacity’ and ‘patient choice’ (2022)

Kate Gridley, Kate Baxter, Yvonne Birks, Louise Newbould, Stephen Allan, Daniel Roland, Gintare Malisauskaite, Karen Jones

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Journal Article

Qualitative Review on Domains of Quality of Life Important for Patients, Social Care Users, and Informal Carers to Inform the Development of the EQ Health and Wellbeing (2022)

C Mukuria, J Connell, J Carlton, T Peasgood, A Scope, M Clowes, S E Rand, K Jones, J Brazier

Value in Health

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Journal Article

What Is Out There and What Can We Learn? International Evidence on Funding and Delivery of Long-Term Care (2021)

Daniel Roland, Julien Forder, Karen Jones

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Journal Article

What Is Out There and What Can We Learn? International Evidence on Funding and Delivery of Long-Term Care (2021)

Daniel Roland, Julien Forder, Karen Jones

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Journal Article

Social care-related quality of life of people with dementia and their carers in England (2021)

S E Rand, Silarova B, Towers AM, Jones K

Health and Social Care in the community, 00, 1-13

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Journal Article

The influence of home care supply on delayed discharges from hospital in England (2021)

S Allan, D Roland, G Malisauskaite, K Jones, K Baxter, K Gridley, Y Birks

BMC Health Services Research volume 21, Article number 1297

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Journal Article

What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality-adjusted life years? Application to the development of the EQ-HWB? (2021)

Peasgood T, Mukuria C, Carlton J, Connell J, Devlin N, Jones K, Lovett R, Naidoo B, Rand S, Rejon-Parilla J, Rowen D, Tsuchiya A, Brazier J

The European Journal of Health Economics

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Journal Article

Measuring safety in older adult care homes: a scoping review of the international literatur (2021)

Rand S, Smith N, Jones K, Dargan A, Hogan H

BMJ Open 11, e043206

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Journal Article

Estimating EQ-5D utilities based on the Short-Form Long Term Conditions Questionnaire (LTCQ-8) (2020)

Health and Quality of Life Outcomes

Springer Nature

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Journal Article

The Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England (2017)

Potter C, Batchelder L, A'Court C, Geneen L, Kelly L, Fox D, Baker M, Bostock J, Coulter A, Fitzpatrick R, Forder J, Gibbons E, Jenkinson C, Jones K, Peters M

BMJ Open

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Journal Article

Implementing personal health budgets in England: a user-led approach to substance misuse (2016)

Welch E, Jones K, Caiels J, Windle K, Bass R

Health and Social Care in the Community

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Journal Article

Revisiting the causes of stress in social work: sources of job demands, control and support in personalised adult social care (2014)

Wilberforce M, Jacobs S, Challis D, Manthorpe J, Stevens M, Jasper R, Fernández J-L, Glendinning C, Jones K, Knapp M, Moran N, Netten A

British Journal of Social Work 44, 4, 812-830

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Journal Article

Can individual budgets have a positive impact on carers and the caring role? (2014)

Jones K, Netten A, Rabiee P, Glendinning C, Arksey H, Moran N

Ageing and Society 34, 1, 157-175

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Journal Article

Personalization in the health care system: do personal health budgets impact on outcomes and cost (2013)

Jones K, Forder J, Caiels J, Welch E, Glendinning C, Windle K

Journal of Health Services Research and Policy 18, 2 suppl, 59-67

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Journal Article

Older people’s experiences of cash-for-care schemes: evidence from the English Individual Budget pilot projects (2013)

Moran N, Glendinning C, Wilberforce M, Netten A, Jones K, Manthorpe J, Knapp M, Fernández J-L, Challis D, Jacobs S, Stevens M

Ageing and Society 33, 5, 826-851

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Journal Article

The personalization of care services and the early impact on staff activity patterns (2013)

Jacobs S, Abell J, Stevens M, Wilberforce M, Challis D, Manthorpe J, Fernández J-L, Glendinning C, Jones K, Knapp M, Moran N, Netten A

Journal of Social Work 13, 2, 141-163

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Journal Article

Personalisation and carers: Whose rights? Whose benefits? (2012)

Moran N, Arksey H, Glendinning C, Jones K, Netten A, Rabiee P

British Journal of Social Work 42, 3, 461-479

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Journal Article

Personalisation through Individual Budgets: does it work and for whom? (2012)

Netten A, Jones K, Knapp M, Fernández J-L, Challis D, Glendinning C, Jacobs S, Moran N, Stevens M, Wilberforce M

British Journal of Social Work 42, 8, 1556-1573

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Journal Article

The impact of Individual Budgets on the targeting of support: findings from a national evaluation of pilot projects in England (2012)

Jones K, Netten A, Fernández J-L, Knapp M, Challis D, Glendinning C, Jacobs S, Manthorpe J, Moran N, Stevens M, Wilberforce M

Public Money and Management 32, 6, 417-424

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Journal Article

Implementing consumer choice in long-term care: the impact of individual budgets on social care providers in England (2011)

Wilberforce M, Glendinning C, Challis D, Fernández J-L, Jacobs S, Jones K, Knapp M, Manthorpe J, Netten A, Stevens M

Social Policy and Administration 45, 5, 593-612

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Journal Article

Personalisation and partnership: competing objectives in English adult social care? The Individual Budget Pilot Projects and the NHS (2011)

Glendinning C, Moran N, Challis D, Fernández J-L, Jacobs S, Jones K, Knapp M, Manthorpe J, Netten A, Stevens M, Wilberforce M

Social Policy and Society 10, 2, 151-162

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Journal Article

Joining up government by integrating funding streams? The experiences of the Individual Budget pilot projects for older and disabled people in England (2011)

Moran N, Glendinning C, Stevens M, Manthorpe J, Jacobs S, Wilberforce M, Knapp M, Challis D, Fernández J-L, Jones K, Netten A

International Journal of Public Administration 34, 4, 232-243

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Journal Article

Individual budgets and adult safeguarding: Parallel or converging tracks? Further findings from the evaluation of the Individual Budget pilots (2011)

Manthorpe J, Stevens M, Rapaport J, Challis D, Jacobs S, Netten A, Jones K, Knapp M, Wilberforce M, Glendinning C

Journal of Social Work 11, 4, 422-438

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Journal Article

Assessing the role of increasing choice in English social care services (2011)

Stevens M, Glendinning C, Jacobs S, Moran N, Challis D, Manthorpe J, Fernández J-L, Jones K, Knapp M, Netten A, Wilberforce M

Journal of Social Policy 40, 2, 257-274

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Journal Article

The costs of change: a case study of the process of implementing individual budgets in 13 pilot local authorities in England (2010)

Jones K, Netten A

Health and Social Care in the Community 18, 1, 51-58

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Journal Article

Individual budget projects come under the microscope (2009)

Manthorpe J, Stevens M, Challis D, Netten A, Glendinning C, Knapp M, Wilberforce M, Jacobs S, Jones K, Moran C, Fernández J-L

Mental Health Today 8, 10, 22-26

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Journal Article

Evaluating the individual budget pilot projects (2007)

Glendinning C, Challis D, Fernández J-L, Jones K, Knapp M, Manthorpe J, Netten A, Stevens M, Wilberforce M

Journal of Care Services Management 1, 2, 123-128

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Journal Article

Provider and care workforce influences on quality of home care services in England (2007)

Netten A, Jones K, Sandhu S

Journal of Aging and Social Policy 19, 3, 81-97

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Journal Article

Using older home care user experiences in performance monitoring (2007)

Jones K, Netten A, Francis J, Bebbington A

Health and Social Care in the Community 15, 4, 322-332

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Edited Books

Edited Book

Unit Costs of Health and Social Care (2021)

Jones K, Burns A

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Book Sections

Book Section

Personal health budgets: implementation and outcomes (2016)

Jones K, Forder J, Caiels J, Welch E, Windle K

Policy Press

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Book Section

Evaluation of the personal health budget pilot programme (2014)

Forder J, Jones K

Policy Press

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Book Section

Costs and uses of Individual Budgets (2008)

Jones K

Personal Social Services Research Unit, University of Kent

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Book Section

The cost of providing home care (2005)

Jones K

Personal Social Services Research Unit, University of Kent

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Reports

Report

Personal health budgets: Targeting of support and the service provider landscape (2018)

Jones K, Welch E, Fox D, Caiels J, Forder J

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Report

Personal Health Budgets: Implementation following the national pilot programme; overall project summary (2018)

Jones K, Welch E, Fox D, Caiels J, Forder J

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Report

Identifying options for funding the NHS and social care in the UK: international evidence (2018)

Cylus J, Roland, D, Nolte E, Corbett J, Jones K, Forder J, Sussex J

Health Foundation

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Report

A system-level evaluation of the Better Care Fund: Final Report (2018)

Forder J, Caiels J, Harlock J, Wistow G, Malisauskaite G, Peters M, Marczak J, D'Amico F, Fernández J-L, Fitzpatrick R, Jones K

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Report

Personal Health Budgets: Process and context following the national pilot programme (2017)

Jones K, Forder J, Welch E, Caiels J, Fox D

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Report

Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary (2016)

Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A

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Report

IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF) (2016)

Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A

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Report

Implementing personal health budgets within substance misuse services (2013)

Welch E, Caiels J, Bass R, Jones K, Forder J, Windle K

PSSRU Discussion Paper 2858, University of Kent

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Report

The cost of implementing personal health budgets (2011)

Jones K, Forder J, Caiels J, Welch E, Windle K, Davidson, Dolan P, Glendinning C, Irvine A, King D

PSSRU Discussion Paper 2804, University of Kent

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Report

Early experiences of implementing personal health budgets (2010)

Jones K, Caiels J, Forder J, Windle K, Welch E, Dolan P, Glendinning C, King D

PSSRU Discussion Paper 2726/2, University of Kent and London School of Economics

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Report

Home Care Re-ablement Services: Investigating the Longer-term Impacts (prospective longitudinal study) (2010)

Glendinning C, Jones K, Baxter K, Rabiee P, Wilde A, Arksey H, Curtis L, Forder J

Social Policy Research Unit, University of York

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Report

Experiences of Implementing Personal Health Budgets: Second Interim Report (2010)

Jones K, Welch E, Forder J, Windle K, Davidson J, Dolan P, Glendinning C, Irvine A, King D

PSSRU Discussion Paper 2747/2, University of Kent and London School of Economics and Political Science

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Report

The Short-term Outcomes and Costs of Home Care Re-ablement Services (2009)

Jones K, Baxter K, Curtis L, Arksey H, Forder J, Glendinning C, Rabiee P

Social Policy Research Unit, University of York

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Report

The Organisation and Content of Home Care Re-ablement Services: Interim Report (2009)

Rabiee P, Glendinning C, Arksey H, Baxter K, Jones K, Forder J, Curtis L

Social Policy Research Unit, University of York

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Report

The Individual Budgets Pilot Projects: Impact and Outcomes for Carers (2009)

Glendinning C, Arksey H, Jones K, Moran N, Netten A, Rabiee P

Social Policy Research Unit, University of York

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Report

Evaluation of the Individual Budgets Pilot Programme: Summary Report (2008)

Glendinning C, Challis D, Fernández J, Jacobs S, Jones K, Knapp M, Manthorpe J, Moran N, Netten A, Stevens M, Wilberforce M

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Report

Evaluation of the Individual Budgets Pilot Programme: Final Report (2008)

Glendinning C, Challis D, Fernández J-L, Jacobs S, Jones K, Knapp M, Manthorpe J, Moran N, Netten A, Stevens M, Wilberforce M

Social Policy Research Unit, University of York

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Project Outlines

Project Outline

Evaluation of the Personal Health Budgets Pilot (PSSRU Project Outline 91) (2010)

Jones K, Caiels J, Forder J, Windle, K

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Project Outline

Home care reablement services: investigating the longer-term impacts (2009)

Forder J, Jones K

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Project Outline

Extended User Experience Survey of Community Equipment Services 2007/08. PSSRU Project Outline 73, December 2007 (2007)

Netten A, Smith N, Malley J, Jones K, Cox L

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Project Outline

Outcomes, quality and costs of community equipment services. PSSRU Project Outline 64 (2005)

Netten A, Smith N, Jones K, Cox L

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Research Summaries

Research Summary

Evaluation of Somerset's Partnership of Older People Project: Interim Report. PSSRU Research Summary 46 (2007)

Netten A, Jones K, James L

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DP or working papers

DP or working paper

How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project. Executive Summary (2015)

Heath C, Malley J, Razik K, Jones K, Forder J, Fox D, Caiels J, Beecham J

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DP or working paper

Further analysis of ASCS and PSS SACE data: Case studies of local authority (LA) practice (2015)

Heath C, Razik K, Jones K, Beecham J, Forder J, Malley J

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DP or working paper

How can MAX help local authorities to use social care data to inform local policy? (Infographic) (2015)

Al-Tahhan, Nat

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DP or working paper

How can MAX help local authorities to use social care data to inform local policy? (Executive summary) (2015)

Heath C, Malley J, Razik K, Jones K, Forder J, Fox D, Caiels J, Beecham J

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DP or working paper

How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project (2015)

Heath C, Malley J, Razik K, Jones K, Forder J, Fox D, Caiels J, Beecham J

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DP or working paper

Using Survey Data to Measure Changes in the Quality of Home Care. Analysis of the Older People's User Experience Survey 2006 (2007)

Malley J, Netten A, Jones K

PSSRU Discussion Paper 2417/2, University of Kent

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Conference presentation outputs

Conference presentation output

Factors influencing individual variation in home care service quality: case study within a local authority (2005)

Sandhu S, Bebbington A, Jones K, Netten A

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Conference presentation output

Home Care Provider Study: Provider characteristics and area effects associated with prices for local authority funded clients (2005)

Jones K, Netten A, Sandhu S

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Conference presentation output

Service user satisfaction as a measure of performance in home care. Paper presented at Annual Scientific Meeting of The Gerontological Society of America 2004, 'Promoting the Health of an Aging Population', Washington DC, USA, November 2004 (2004)

Netten A, Jones K

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Manuscripts

Manuscript

Implementing personal health budgets: Opportunities and challenges for the NHS (2016)

Jones K, Caiels J, Welch E, Windle K, Forder J, Glendinning C, King D

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Manuscript

Performance and quality: user experiences of home care services. Final report (2004)

Netten A, Francis J, Jones K, Bebbington A

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Posters

Poster

Development of a Long-Term Conditions Questionnaire (LTCQ) social care subscale (LTCQ-S) (2017)

Batchelder L, Fox D, Jones K, Forder J, Potter C, Geneen L, Fitzpatrick R, Peters M

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Poster

Validation of the Long-Term Conditions Questionnaire (LTCQ) (2017)

Potter C, Geneen L, Batchelder L, Kelly L, Fox D, Gibbons E, Jones K, Jenkinson C, Coulter A, Forder J, Flach C, Peters M

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Generic publications

Generic

The Impact of Personal Budgets on Social Care Providers: Perspectives from the Individual Budget Pilots (2008)

Wilberforce M, Glendinning C, Fernández J-L, Challis D, Jacobs S, Jones K, Knapp M, Manthorpe J, Moran C, Netten A, Stevens M

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Blogs

Blog

Where do we go from here? Hospital discharge for older people (2023)

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Blog

Using reports to maximise the local relevance, value and use of adult social care and carers data for local performance improvement (2016)

Heath C, Jones K

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Blog

Using the analysis findings from the Adult Social Care Survey (ASCS) and Carers Survey (PSS SACE) to fulfil local authority (LA) information needs (2016)

Heath C, Rand S, Jones K

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Blog

Maximising the local value of adult social care and carers survey data through stakeholder engagement (2016)

Heath C, Jones K

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Blog

Helping local authorities to maximise the local value and use of adult social care date for performance improvement (2016)

Heath C, Jones K

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Blog

Meeting local information needs with ASCS and PSS SACE data (Blog) (2015)

Heath C, Malley J, Razik K, Jones K, Forder J, Caiels J, Beecham J

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